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Author Topic: Kidney Failure Victim Wants to Share Life Saving Secrets  (Read 5410 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: April 05, 2007, 05:45:04 PM »

Kidney Failure Victim Wants to Share Life Saving Secrets With You ... Before It's Too Late

MONTEREY, Calif., April 5 /PRNewswire/ -- Sheila Shaw wonders why most patients diagnosed with kidney failure don't take control of their health issues. "I lost my kidney function at 22 years old and was told that I wasn't going to make it through the night. That was 20 years ago."

(Photo: http://www.newscom.com/cgi-bin/prnh/20070405/NYFNST06)

As the CEO of Patient's Pride, Inc., a kidney transplant recipient, and a former peritoneal dialysis patient, Shaw states that you can reach forward and live the life that you deserve despite living with kidney failure or any other chronic illness.

"I was determined to make it through, and I'm shocked to find that most patients succumb to their diagnoses. It's like they just give up," says Shaw. Shaw created her company specializing in catheter support systems on the advice of her doctor who requested that she make her PD Security Bands(TM) available to his other patients, to prevent their catheters from accidentally being pulled out of their bodies.

"Become a pro-active member of your medical team," Shaw advises. She is always amazed at how many patients do not know their doctors' and nurses' names.

"So many patients are so intimidated by their medical team that they're too afraid to speak up when they are feeling serious side effects and discomfort from their medications."

Carry a Medical Alert Card on you at all times, so medical professionals can access your medical and emergency contact information should you be in a crisis situation and cannot speak for yourself, Shaw says.

"I was disappointed when I discovered that approximately 80% of the patients I've talked with who have diabetes, high blood pressure, and other serious health issues, do not have any type of medical alert card, nor do their caregivers. This is suicide," says Shaw.

"Full Tilt -- How to Reclaim Your Life In Spite of Living with a Chronic Illness," is available for $16.95 from Patient's Pride, Inc., 395 Del Monte Center, Ste 182, Monterey, CA 93940, telephone number 866-607-7433, or at http://www.patientspride.com/.

Note to Editors: Review copies available. Shaw is available for interview. Contact Peggi Speers, (831) 626-3705, Peggi@patientspride.com.

Photo: NewsCom: http://www.newscom.com/cgi-bin/prnh/20070405/NYFNST06AP Archive: http://photoarchive.ap.org/PRN Photo Desk, photodesk@prnewswire.com

Patient's Pride, Inc.

CONTACT: Peggi Speers of Patient's Pride, Inc., +1-831-626-3705,Peggi@patientspride.com

Web site: http://www.patientspride.com/
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......

« Reply #1 on: April 07, 2007, 02:02:45 PM »

So where are the "Secrets"  tell me something i dont know, these are not "secrets" she is full of it.  sorry, :P  ::)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
okarol
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« Reply #2 on: April 08, 2007, 12:20:28 AM »

 ??? Yeah, she wants to "share" the secrets -- for only $16.95??? WTF?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
George Jung
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« Reply #3 on: April 08, 2007, 02:06:01 AM »

That's just disgusting.
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Sluff
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« Reply #4 on: April 08, 2007, 05:44:19 AM »

Another money monger trying to make a buck of other peoples misfortunes.
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MyssAnne
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« Reply #5 on: April 08, 2007, 06:52:23 AM »

I think we would do better here on this forum than to buy any information from her. I've been
impressed with the quaility of integrity and outlook here and trust it (and you) to give me
pertinent information I need for a quality life.
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Zach
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"Still crazy after all these years."

« Reply #6 on: April 08, 2007, 08:36:26 AM »

Where's my royalty check?!
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
RichardMEL
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« Reply #7 on: April 08, 2007, 10:30:25 AM »

I think the most important "secret" is the one talked about in the article - be proactive and a part of your medical team. By this I mean take an active interest in your health and what you can do to make the most of it.

The way I see it is that it's MY body not the nurses or the docs or anything.. if I don't give a damn about it then why should I expect anyone else to? So I get the results of labs and go over them (my last lot are very good except for Calcium which is a bit high). I almost always talk to the nurses about where things are at and I have the final say on the UF rate or other settings on my machine (and by now the nurses understand that I seem to have a fair grip on what is going on so accept what I request, or if they ask why I have wanted something in particular if I explain they are ok with it).

The other "secret" I think is to do the best to remain positive. Sometimes it is very hard specially when you can see nothing but dialysis ongoing with the diet and fluid restrictions and all the rest that we know so well.. but I think attitude can do as much help/damage as other things.

Not to say I am perfect or anything.. far from it (guess who is craving a coke right now? :) ).. but I definitely think an active interest and participatin in one's own health and care, and a positive attitude will go a long way to dealing with things well.

I'm not charging anyone here anything :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sluff
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« Reply #8 on: April 08, 2007, 12:28:55 PM »

Did someone say coke?  >:D
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goofynina
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He is the love of my life......

« Reply #9 on: April 08, 2007, 12:43:45 PM »

Did someone say coke?  >:D

Calm down Sluff, he was talking about Coke COLA!!!  lmao ;)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
RichardMEL
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« Reply #10 on: April 09, 2007, 01:09:12 AM »

yes... I'm not sure is Cocaine high in potassium???? :D lol

oh and another tip, and this is for Mina..... love a kitty and they will love you back and lower your stress levels!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sluff
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« Reply #11 on: April 09, 2007, 07:28:16 AM »

Did someone say coke?  >:D

Calm down Sluff, he was talking about Coke COLA!!!  lmao ;)


Let me down easy next time would ya. ;)
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goofynina
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He is the love of my life......

« Reply #12 on: April 09, 2007, 10:32:42 AM »

yes... I'm not sure is Cocaine high in potassium???? :D lol

oh and another tip, and this is for Mina..... love a kitty and they will love you back and lower your stress levels!!!

That cat will be sooooo spoiled RichardMel,  is it possible to love something so much and you dont even have it yet?  My stress level does need some kitty attention though, i have been patiently waiting, now, it is time  ::)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Sluff
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« Reply #13 on: April 09, 2007, 12:51:21 PM »

yes... I'm not sure is Cocaine high in potassium???? :D lol

oh and another tip, and this is for Mina..... love a kitty and they will love you back and lower your stress levels!!!

That cat will be sooooo spoiled RichardMel,  is it possible to love something so much and you dont even have it yet?  My stress level does need some kitty attention though, i have been patiently waiting, now, it is time  ::)


pprrrrr  ppprrrrrrrrrrrrr  pprrrrr will that help til you get your kitty?
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kitkatz
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« Reply #14 on: April 28, 2007, 04:18:20 PM »

God I hate people who think they have invented the wheel over again!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
st789
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« Reply #15 on: May 03, 2007, 04:49:03 PM »

WTF....$16.95  I rather use that on some other magazines which would give me more enjoyment than reading the book to remind myself of my sickness.  What a bunch of bullcrap....Just imagine if the $$$$ he rolls in with the book. Blip................
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Chicken Little
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« Reply #16 on: May 03, 2007, 11:04:41 PM »

I do love Sheila's belts and she been very supportive, via phone, and helped me work through some PD issues.  I do like her very much.   I have a copy of this CD though and, well, she needs to stick to making PD belts.  The soundtrack playing behind her talking is so unbelievably corny and definitely good for a few laughs, although it's not meant to be funny.  I don't think I can upload and post snippets without breaking some copyright law.  It's up for grabs if anyone wants it though.   ;D
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Rerun
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Going through life tied to a chair!

« Reply #17 on: May 04, 2007, 03:23:34 AM »

I wonder if she realizes that selling the book will screw up her disability!!

I've had a poor attitude for 20 years and I'm still alive!
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