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November 25, 2024, 05:45:48 PM

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Author Topic: Got me a transplant in time  (Read 1394 times)
Seaweed
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Great day to be alive and thankful
« on: October 26, 2022, 02:51:05 PM »
sorry i haven't been on in awhile, its been a long road for me. I Went from PD to two hernias, 3 surgery on arm for fistula , open heart surgery two infected catheters

I had a stroke, finally landed on hemo dialysis , all in about 9 years. i been going to scripts hospital in San Diego because they don't use steroids , one day i said god i need your help i got a little girl who needs my help, You see at 69 yrs i became a foster parent my wife and i , straight out of the hospital shes 2yrs old now. what a beautiful thing

3 months ago i took a cadaver ,am a little slow , i can open a pharmacy with all these pills i take  :waving;
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MooseMom
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« Reply #1 on: October 26, 2022, 03:10:06 PM »
Oh my!  You've really been through the wars, haven't you!  But what a great, fantastic, marvelous end to such a nightmare!  A new daughter and a new kidney.  I'm thrilled to bits for you.   :clap;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: October 26, 2022, 04:39:32 PM »
 :bandance; Congrats on your transplant. You've been through a lot. So sweet that you can be a foster parent!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
iolaire
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« Reply #3 on: October 27, 2022, 05:48:54 AM »
Congratulations!
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
UkrainianTracksuit
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« Reply #4 on: October 27, 2022, 05:46:09 PM »
What a nice update! Congrats!  :clap;
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kristina
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« Reply #5 on: November 03, 2022, 10:46:27 AM »
Hello again Seaweed, and I do hope you are continuing well (step-by-step) with your stroke-recovery (... it also took many years with me ...) and I send you my congratulations to your successful kidney-transplant and please take great care & best wishes from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: November 04, 2022, 07:08:41 AM »
Lovely to hear your story Seaweed. Keep doing what you’re doing, and have an extra drink on me


   :cheer: :cheer:  Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
SooMK
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« Reply #7 on: November 06, 2022, 10:23:58 AM »
What a wonderful story. Best wishes to you and your family!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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