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Author Topic: GOT a TRANPLANT!  (Read 1619 times)
Naynay99
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« on: July 02, 2022, 08:29:44 AM »
Hey. Just wanted to post an update and let you all know that after 7/-8
months on PD dialysis I got a kidney transplant Thursday 6/30.   Doing well so far.  My creatinine is down from 6 to 2.1 so far.  It began working right away.
  In a lot of pain when I try to move and need help getting up or moving around still but otherwise feeling good.   Was originally a backup so was so surprised when u get the come to hospital call came  the next am.  What a way to start the summer!!!   

So grateful.  Once I am feeling a bit lore mysel I’m excited about being able to do all the stuff that I put on hold this past year, like traveling. 
Anyway will update again later.  Take care everyone.
R
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tigtink
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« Reply #1 on: July 02, 2022, 08:39:36 AM »
How wonderful!! Creatinine down from 6 to 2.1 so soon is fabulous! Congratulations and wishes for a speedy recovery. Please keep us updated on your progress.
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MooseMom
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« Reply #2 on: July 02, 2022, 01:10:24 PM »
This news is beyond terrific!!  I am thrilled to bits for you and wish you only the very best.  I look forward to hearing more from you and how you are progressing.  Thanks so much for letting us know.  I'm so happy!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sue
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« Reply #3 on: July 02, 2022, 08:07:27 PM »
So happy for you ! I love hearing that people have had transplants, gives me hope :) Wishing you a speedy recovery.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: July 03, 2022, 02:28:35 AM »
Fantastic news!!!  :yahoo;


Enjoy an extra drink on me  :angel;


Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kristina
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« Reply #5 on: July 03, 2022, 05:48:53 AM »
Great news!!! I am very happy for you and please take great care!!!
Best-of-luck-wishes from Kristina and congratulations to the great news!!! Take care!!! :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Naynay99
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« Reply #6 on: July 03, 2022, 06:05:57 PM »
Thanks everyone.   Doing okay.  Kidney function seems like it’s getting better each day.  Pain is still really bad, but I can now get up from the chair on my own and walk to the bathroom.   They wouldn’t give me iv pain meds Bc of my low bp, gave me oxy which I don’t like how it made me feel so I refused it.  Am now pn tramadole every 8 hrs plus Tylenol.  Idk if it helps but feel better than taking an opioid. 
I don’t remember the pain being this bad last time but it was 33 years ago so perhaps it did.  I will say that I had awesome service thurs and fri, but this weekend was a joke.  Took like 25 min for my call bell to get answered Bc there were so few ppl working here.  Apparently being in the hospital on the weekend before the 4th of July here in the USA means skeleton crew even ina transplant hospital.   Crazy. 
At least the night nurse is good. 

They are planning to let me go home tomorrow if all looks good.  I still have a drain in and a stent.  But no more foley cath or iv drugs.   My mom is staying w me so she will be able to help me recover.   
Will share more later when feeling better. 
R
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kristina
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« Reply #7 on: July 04, 2022, 01:41:38 AM »
Many thanks for taking the time to up-date us on your progress. I am very sorry for your current medical problems and hopefully they are "teething-problems" straight after your transplant? Fingers crossed and hopefully "things" go better from now on and I am very glad that your mother is with you to help with your recovery and I send you my good-luck wishes from Kristina. :grouphug; Good Luck!
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Naynay99
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« Reply #8 on: July 04, 2022, 05:53:29 AM »
Thank you.
I finally pooped which I think helped some.  Lol
I am now able to get up from bed and chair on my own.  Still have pain but otherwise all looks good.  Creatinine is now 1.29. And hemoglobin is going back up. 
The drs just came in and said I can go home today.  Excited to be discharged.    Hopefully will continue to recover and things will start looking up.  The future is looking pretty good atm. 
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cassandra
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When all else fails run in circles, shout loudly
« Reply #9 on: July 04, 2022, 07:16:24 AM »
 :yahoo; :2thumbsup; :yahoo;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
SooMK
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« Reply #10 on: July 04, 2022, 09:49:57 AM »
Fantastic news. Congrats!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
MooseMom
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« Reply #11 on: July 04, 2022, 12:55:16 PM »
Quote from: Naynay99 on July 04, 2022, 05:53:29 AM
Thank you.
I finally pooped which I think helped some.  Lol
I am now able to get up from bed and chair on my own.  Still have pain but otherwise all looks good.  Creatinine is now 1.29. And hemoglobin is going back up. 
The drs just came in and said I can go home today.  Excited to be discharged.    Hopefully will continue to recover and things will start looking up.  The future is looking pretty good atm.

Pooping is good!  You're making great progress, otherwise your doctors wouldn't be letting you go home.  Please do let us know how things are going once you get home and continue recovering.  I'm eager to hear how you are getting on with your new cocktail of immunosuppressants.  It takes a while to get used to a new routine.

Again, congratulations!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
UkrainianTracksuit
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« Reply #12 on: July 05, 2022, 05:50:55 PM »
Hey! Big congratulations! I am so happy for you!

Hopefully by the time you are ready to travel/hit the skies, all the airport insanity will be cleared up! Life your best life! Rooting for you.
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Naynay99
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« Reply #13 on: July 06, 2022, 03:11:46 PM »
Thanks!
Had my first clinic appt today.  Creatinine is down to 1.  They are upping the tacro and giving me a phosphors med. i have to increase my dairy as my P is low.  She even told me to have diet coke!  Haven’t had cola in years.   
Feeling okay. They gave me lasix
So should get rid of some of the swelling in feet. 

Pain is still biggest complaint but otherwise I’m feeling good.   They r gonna take out drain Friday, and schedule to remove PD cath prob next week.  It’s all so surreal.  Still kind of feel in a brain fog tho.  Thank  god my mom is here to help me. 

Thanks for all the well wishing.  This is all so crazy it doesn’t exactly feel real yet. 
R
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iolaire
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« Reply #14 on: July 10, 2022, 09:58:28 PM »
Congratulations that is good news!
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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