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Author Topic: Introducing myself  (Read 2700 times)
Larry Robinson
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« on: May 14, 2020, 11:30:24 AM »
I'm Larry, a 62 year old who's been on nocturnal PD (AMIA cycler) for about 2½ years. I'm doing 4 3-liter cycles of yellows (1.5%) per night. It's going OK, except for alarms more often than not. I've been on the waitlist for a transplant for about 4 years now, but I'm not getting my hopes up.

Cheers,
Larry
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cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: May 15, 2020, 04:47:11 PM »
Welcome to the site Larry


   :welcomesign;




Keep taking care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #2 on: May 19, 2020, 11:20:37 PM »
 :welcomesign; Welcome to the site, Larry!  :clap;  I applaud you for doing your dialysis at home. Keep it up!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Hereware
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« Reply #3 on: September 25, 2020, 01:38:22 AM »
Hi there Larry. How have you been?
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kristina
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« Reply #4 on: September 25, 2020, 04:01:14 AM »
Hello Larry,

Welcome and good luck for your progress on the waiting-list. It should not take too long anymore since you have already been waiting for 4 years, but there again, it depends on your medical history and where you are. Are you in America, Canada or here in England?

Best wishes from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
iolaire
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« Reply #5 on: September 25, 2020, 06:28:41 AM »
Welcome to the group.  You probably already found the wealth of experiences we all share?
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
frugallyzing
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« Reply #6 on: November 24, 2020, 12:59:03 PM »
Hey Larry! Welcome to the group. I hope you are well. I wish you the best, and I'll see you around!
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Blodwyn
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« Reply #7 on: January 02, 2021, 02:07:41 PM »
75 years of age; routine physical found excess protein in urine at approx. age 55; kidney biopsy at approx. age 60 diagnosed nephrotic neuropathy; admitted to transplant waiting list
November 2017 when GFR down to 15; GFR has been hovering at 9 and 10 for past 6 months; had fistula established 6months ago; matured very slowly but just now deemed useable; am about to start in clinic hemo.
Don't know much about being on dialysis other than that there are in clinic hemo,  home hemo and home peritoneal.
Just read that peritoneal apparently involves ingesting limited amounts of fluids. Hoping to learn more about that and whether that also applies to hemo.
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MooseMom
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« Reply #8 on: January 02, 2021, 02:57:57 PM »
Quote from: Blodwyn on January 02, 2021, 02:07:41 PM
75 years of age; routine physical found excess protein in urine at approx. age 55; kidney biopsy at approx. age 60 diagnosed nephrotic neuropathy; admitted to transplant waiting list
November 2017 when GFR down to 15; GFR has been hovering at 9 and 10 for past 6 months; had fistula established 6months ago; matured very slowly but just now deemed useable; am about to start in clinic hemo.
Don't know much about being on dialysis other than that there are in clinic hemo,  home hemo and home peritoneal.
Just read that peritoneal apparently involves ingesting limited amounts of fluids. Hoping to learn more about that and whether that also applies to hemo.

Hello, Blodwyn.  Quite a few of us here have experienced lengthy and gradual declines in kidney function, so your story is not at all unusual.

Kidney School is one of the best, if not THE best, resources for education about kidneys and treatments for renal failure. 

https://kidneyschool.org/

Just click on "Learning Modules", and you will have really good information on hand!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Simon Dog
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« Reply #9 on: January 03, 2021, 03:07:59 PM »
Peritoneal involves pouring in large quantities of fluid into your peritoneum (hence the term) via a surgically planted cather and draining the fluid after it dwells for a while.  You are still on a fluid restricted diet, though less than hemo, and in particular, less than in-center hemo (if you compare to home protocols more than 3x/wk).
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