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Author Topic: Hello Again - I'm Back  (Read 2216 times)
Python
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Bobby the Python

« on: December 02, 2018, 06:23:48 PM »

Hello everyone.  It's been a long time since I've posted about my son - 2009 I think.

A lot has happened in that time.  My son, Ian's transplanted kidney lasted 6 years then failed due to Tacrolimus poisoning that wasn't picked up early enough so he was back on dialysis again.  Couldn't get peritoneal dialysis because of adhesions caused by an appendectomy so has been on haemo for the past 4 years - until last week when he got "the call" but I have questions about that which I'll put on the transplant forum - I know I'll get answers from you lovely people :D

I lost my husband in 2011.  He had another heart attack which left him with only 1/3rd of his heart working and had to have a CRTD device fitted which helped a lot but he'd only been home for 3 weeks when he passed away with something unrelated to his heart.  Anyway, life goes on but now there's only Ian and myself plus our cats, dog and pet snakes.

Hoping everyone is keeping well and dialysis/transplants are working for everyone.
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Alports Syndrome - A Rare Breed Indeed!!!
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: December 03, 2018, 08:30:03 AM »

Welcome back Python


   :welcomesign;


Keep strong, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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