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Author Topic: Bob from Farmington, introducing self  (Read 3651 times)
galasso
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« on: September 15, 2018, 09:43:22 PM »
My name is Bob. I am a 38-year-old male from Farmington, NY.  I was diagnosed with Alport Syndrome at the age of 8. Diagnosed with end-stage renal failure at the age of 14 in March of 95.  I was put on emergency hemodialysis and stayed on it for about two weeks while my peritoneal dialysis catheter healed. I had my first transplant on 2/15/96. It was a living donor from my father (very good because I’m adopted). I’m currently on the transplant list again (but not yet on dialysis) as the transplanted kidney is failing.
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Michael Murphy
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« Reply #1 on: September 15, 2018, 09:57:12 PM »
Welcome to the group of ESRD. Survivors. 
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iolaire
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« Reply #2 on: September 15, 2018, 09:58:39 PM »
Welcome to the group. Congratulations on the longevity of your transplant.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Paul
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That's another fine TARDIS you got me into Stanley
« Reply #3 on: September 16, 2018, 04:53:25 AM »
 :welcomesign;
Hello Bob. Welcome to the site.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
kristina
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« Reply #4 on: September 16, 2018, 09:08:11 AM »
Hello Bob and welcome to IHD.
Your introduction is very interesting and it was very sweet of your father to donate a kidney to you and I wonder how compatible it was, since you were adopted? Or were you adopted within the family?.
Best wishes and good-luck-wishes with the transplant list from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly
« Reply #5 on: September 16, 2018, 12:38:54 PM »
Welcome to the site Bob


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MooseMom
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« Reply #6 on: September 16, 2018, 03:38:17 PM »
Welcome to our little community!  Are you feeling pretty well in general at the moment?  For how long have you been on the list?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Charlie B53
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« Reply #7 on: September 16, 2018, 08:39:13 PM »


Welcome to IHD!

You were very fortunate that your Adoptive Father was that weell matched and the Tx kidney lasted so long.

I Pray you are Blessed again soon with another good match and Tx.

Take Care,

Charlie B53
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galasso
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« Reply #8 on: September 16, 2018, 09:44:00 PM »
Thanks for the warm welcome.  I saw three good questions in responses I'd like to answer. For the question regarding my adoption. I have no blood relation with my adoptive family. The only thing I remember being specifically told when it was revealed my dad was a match, was that we actually share a gene.

The other two questions I'd like to answer was how long I've been on the list, and naturally how I'm feeling. I've only been on the list since August 1st this year.  I have been running out of energy faster as of late. I'm getting labs done later this morning, but my previous labs had my GFR at 18 and my creatinine was 3.8.

Although it's failing, I am proud of this kidney. Due to a complication in surgery (artery kinked), the doctors didn't think it would it would even get me through high school. It's never had my creatinine below 2.0, nor has it kept me from anemia, but otherwise it hung on pretty well.
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Jean
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« Reply #9 on: September 16, 2018, 10:30:31 PM »
Welcome, welcome Bob. Good to have another New Yorker here. Not me, but a long term and very respected member by the name of Zach. If he were with us, he would say look thru the posts of others and then come to the bar and have a drink with us. The bar was imaginary but we sure had a lot of fun at it.
So,   :welcomesign;
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One day at a time, thats all I can do.
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