Introduction

[Loboferos]

So hey,  I'm in my first few weeks of manual PD.. Still kinda feeling like novice to say the least..  I'm not here to bother anyone.  I'm just reading to see if I'm alone in how I'm feeling..  For the most part is a bit overwhelming at this point being so new..  Well take it easy..  Sorry for the interruption..  Thanks for the opportunity to vent..

[iolaire]

Welcome to the group. We have members with a wealth of experience on PD.

[Cupcake]

Welcome!

[Charlie B53]

Welcome to IHD!

I did manuals my first 3 1/2 years until I screwed up and must have 'touched' a fitting while making a connection.  So slight I didn't even realize I had touched it.  Sadly it was enough to cause an infection that had me in the ER within a few hours.  At first I thought I simply had a drain pain and convinced myself it got better with the fill.  But it came back during my dwell and grew worse within the hour.  I was so stupid I waited another cycle and by then it was so bad I could barely breathe.

Released from the hospital in a few days I had to dose every bag with strong antibiotics 10 days.  Evidently that wasn't long enough as only a few days after that ended the infection returned.

Dosed my bags a whole month.  A couple days later it returned again.  The cath had to come out and a Hemo cath went in.  That was almost two years ago.

Stay VERY Careful during EVERY connection and you should be fine.

The diet and fluid freedoms on PD are great!  Hemo?  A whole different thing.  If you do well on PD stay there.

Manuals can be a PITA if you are an active person.  For me I had to set alarms on my phone to remind me to stop, clean up and go do an exchange.  Interrupted my work in the yard, garden, and barn constantly.  Once I got my Cycler I was free all day to do what I pleased.  Although trading off much of my evenings to get ready and connect to the Cycler.  It took me from about 7 pm until 6 am.  That's counting getting my bags together and setting up.  Actual time connected was more like 10 hours, most of that wasted sleeping.

I don't really sleep a long time all at once so it was awkward for me.  But someone that can, PD can work great.  With that added benefit that you can eat anything, drink as much as you want.  I really miss that!

Take Care,

Charlie B53

[kickingandscreaming]

Welcome.  I also do PD.  Starting dialysis is pretty much overwhelming for most people, so you aren't alone. It does get easier with time and practice.  I'm very careful when I set up for PD but mostly I try NOT to be in a hurry when connecting and I stay focused.  So far, so good.  Good luck to you.

[Paul]

 
 Hello Loboferos, welcome to the site.

WRT: "I'm not here to bother anyone" That is the wrong attitude - bother away. Another board I used to frequent held the slogan "The only stupid question is the question not asked." As you can see from the above posts, and from those to follow mine, we have plenty of people on PD here, any one will be able and happy to answer your questions.

[MeatwadsKidneyCar]

We are relatively new to PD as well and new here too!  So hello and welcome.  We can commiserate together!

[Loboferos]

Good afternoon everyone