Hello fellow dialysis haters, I'm Sully. I am 36 years old and I'm from Anchorage, Alaska.
In June 2017 I was hit with some kind of auto-immune disease which attacked my kidneys and put me into renal failure. At the time, the biopsy result showed it was IGA Nephropathy. July 4th 2017 I started hemodialysis and later that month I was back in the hospital due to my lungs bleeding and had to undergo plasmapheresis. I'm told that I have necrotising crescentic glomerulonephritis (try saying that 3 times fast!) and that I am c-ANCA positive. So, they think my auto-immune is some kind of ANCA Vasculitis.
I am working towards getting on the transplant list and I finally finished all of the prerequisite testing, so hopefully I go active on the list soon. I know it will be a few years before I receive a transplant because of the waitlist, but I'm anxious to get on the list. As for dialysis, I still do in-center HD because I tried PD for a couple of weeks and it was a horrible experience. My first AV fistula clotted at the 5 week mark and there was nothing they could do, so I had to get a second one. Fortunately, that one has been working perfectly so far.
Anyways, I browse these forums enough that I thought I would finally post my story and say hello. So hello!
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