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Cheyennes
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« on: July 30, 2018, 09:39:45 PM »

I am 24 years old living with kidney disease and an overactive bladder. I've been on hemo dialysis for a year and a half and I recently started training to do hemodialysis at home. Due to my overactive bladder I constantly make urine so I do not have fluid gains. I was originally doing hemodialysis twice a week but I have now been doing home hemodialysis training 5 times a week and i have never felt worse. My ankles are swollen, and I've never had swelling. My blood pressure is really high even with medication. At least when I was doing twice a week I had 5 days of feeling good. I can't even go to work now. I'm using the nxstage machine which is supposedly supposed to make you feel really good I have not yet. Just wondering if anyone is having the same problem.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: July 31, 2018, 12:58:24 AM »

Hi Cheyennes welcome to the site


   :welcomesign;


It is poss you have been prescribed a wrong Sak or Bag type. Each number of bag (RFP?) or Sak has a specific amount of Potassium (K+), sodium etc. Ask for a blood test, or have a look at them, or your Learned One, and see what's out.


Good luck, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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