introduction

[sakinah]

hi

ive just joined this site to get information and to give information where and whenever possible, I am a dialysis patient and have been for a year now, I was born with a kidney disease called renal tubla aciciocisous but a year ago I was diagonised with stage 5 kidney failure, they have completely shut down now, so im on dialysis and needing a transplant eventually.

I hate dialysis most days but some days are not too bad, one its so boring two I have a bladder problem and always needing to go to the toilet which is embarrassing and if I dont take my pain medication it can be extremely painful in my joints as I have severe arthritis/osteomlacia.  I can relate to a lot of problems that we experience as kidney patients and would love to share the experiences and help anyone who needs support and advice, that goes for me too 


hope to see you on posts

dont expect too many, as I get quite busy or too ill, or theres no internet in the unit to even go on there so annoying!!


sakinah xx

[cassandra]

Welcome to the site


   


Take care, Cas

[Rerun]

So glad you joined us.     Our clinic does have WiFi but it is always kicking me off and it is hard to type with one hand.  I usually watch TV or I have a portable DVD player so I bring a movie. 

[Charlie B53]

Hi Sakinah,

Welcome to IHD.

You must still have some 'residual function' if your kidneys are making enough urine to become a problem during treatments.  I still make a litte, not much of a problem unless I don't void before going in.  The bladder shrinkage over time is what creates the urgency.  A tiny bladder doesn't need much in it to create a problem.  You may need to bring this up with one of your Nurses/Dr's to find out if there is anything helpful. strapped to their leg so as to enable them to keep driving rather than stop for a bathroom break.  I've no idea how well this works.  Same with a catheter. I just cannot see myself inserting one, much less leaving it there during treatment.

I've no interest in a 'smart phone'.  Maybe I'm not smart enough to learn how to use one.  I do not care for such a tiny screen.  I take my laptop to treatment and spend most of my time watching documentaries on youtube.

Take Care,

Charlie B53


I've heard of truckers using some sort of collection bag