Gday! An honest intro...

[Gaffer]

Dear IHD admins and members,

I’ll be straight up from the start; I don’t have ESKD and all I ask is that you please read on as my intentions for joining this site are truly genuine and have patients at the forefront of all that we do.

I’ve been in healthcare all my life both as a clinician (surgery, anaesthetics, resus, critical care) and in Medtech so I do understand/have a very good idea of what you are living with.

My team of 3, includes a young man who is 6 years post transplant and together we’re building a platform dedicated to renal disease. We don’t work for a large company, we are literally a team of 3. For me, it’s been almost a 3 year journey to get here.

We are a digital health startup currently building our first version of the patient app.

We have the support of several renal medicine professors and leading teaching hospitals across Australia.

We hope to carefully release this first version for testing around September/October this year. 

The first version will enable patients to better manage the complexities of life and is for all stages of ESRD, particularly stage 3 onwards.

All in one app.

For those in the UK, we are also taking to Patient View about integrating with them.

My reason for joining is to learn and collaborate with you do  also happy to talk with you.

We’ve also set up a closed Facebook group called Karel do have a look and feel free to join - I’m an admin 😉

I totally understand if you feel I shouldn’t be here. I just want to reach out to uncover what you guys really need to help you live easier and healthier.

Best wishes,

Gaffer

[kristina]

Hello Gaffer and many thanks for joining us here on IHD, it is very much appreciated.
I am very delighted that you, as a dedicated medic, are prepared to learn as much as is possible to learn about ESRF from the standpoint of a patient, in order to understand much better, what patients are really going through, as this is so very important to every ESRF-patient and very much appreciated.
Many thanks again for joining us here on IHD and again a heartfelt welcome from Kristina.

[kickingandscreaming]

Welcome.  I look forward to what you discover.

[Gaffer]

Thanks guys, means a lot to be accepted.

[kristina]

You are very welcome !!! 
All the best wishes again from Kristina.

[MooseMom]

This site is for anyone who looks to make life better for those with CKD/ESKD, be it techs, dieticians, nephs, spouses, friends, social workers, or patients themselves.

As we are living in such a digital age, it only makes sense that there might be technology out there to assist patients of all sorts.

As such, you are very welcome here.  I'd encourage you to ask specific questions from our members so that you can hone your skills.

We all very much look forward to what you create!

[Marilee]

Hi Gaffer and welcome!

I hope you that your app becomes a fine tool for folks dealing with the daily grind of renal insufficiency. I know from spending just a little time here and with our own renal clinic staff that one size doesn't fit all (so many patients are at different stages with differing types of failure along with other diseases and their limits/restrictions/complications), so the app will need to be very flexible, yet not complicated to use: A TALL order indeed. Best wishes to you and your team.

[Jean]

  to IHD, glad you found us.

[Charlie B53]

Welcome to IHD!

I've only one problem with all these 'apps'.  I'm a Dinosaur.  I've only a flip-phone.

I don't even text.

My fat fingers need a real keyboard, like those on my laptopS, and all my desktopS.  Notice the Capitol S.  That's to indicate there are MORE than one or two.  I'm not about to try to stick one in a pocket, or put a strap on one.  Battery life still sucks.  I have a few power bricks alongside different chairs throughout the house in case I feel like sitting somewhere else for a while.

I'm getting pretty good at sitting on my butt for some periods of time.

I Wish you success in developing your app.  Many do not yet realize how important it is to keep track of the details.  How just making the little effort to keep track can cause somoe change in behavior for their betterment.

Take Care,

Charlie B53