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Author Topic: Just checking in  (Read 5237 times)
StarryNight16
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« on: April 27, 2018, 02:13:12 PM »
I'm mid-process in donating a kidney to my wife. Just waiting to hear about the latest test results from the doctors. Just checking in.

I want to also say thanks to the people on this forum. I've really appreciated all of your posts.
« Last Edit: April 27, 2018, 02:45:29 PM by StarryNight16 » Logged
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: April 28, 2018, 09:22:13 AM »
Wow, good luck to you both, Cas


   :flower;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
LorinnPKD
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« Reply #2 on: April 28, 2018, 10:48:12 AM »
Good luck to you both!
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StarryNight16
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« Reply #3 on: May 03, 2018, 01:54:44 PM »
Just found out that surgery will be NEXT MONTH which is CRAZY QUICK. They have to do a final cross-check and some more lab work, I guess... Anyways, wish me luck!
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cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: May 03, 2018, 02:36:49 PM »
Wishing you and your wife all the luck in the world StarryNight16


   :flower;


Love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #5 on: May 03, 2018, 04:53:41 PM »


Whoo Hoo!!

St Louis news just yesterday, or the day before, a Lady donated a kidney to her Husband last month.  All Good!

She is now pregnant!

They are VERY Happy!

Use protection.
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Paul
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That's another fine TARDIS you got me into Stanley
« Reply #6 on: May 04, 2018, 03:26:49 AM »
Good luck to you and your wife with the surgery.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
justagirl2325
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« Reply #7 on: May 04, 2018, 06:16:02 AM »
Good luck, hope it all goes well.
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SooMK
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« Reply #8 on: May 04, 2018, 12:00:05 PM »
Yay! Wishing all goes smoothly. Best of luck to you both.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
StarryNight16
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« Reply #9 on: May 04, 2018, 09:00:02 PM »
Thanks, everyone, for your kind wishes, and I hope that you, too, will all get some good news in your lives. We could all use some.
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StarryNight16
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« Reply #10 on: May 27, 2018, 01:54:09 AM »
Hi everyone, I’m in the hospital recovering from the surgery, and my wife now has a new kidney!!! Woo-hoo!

On to the next stage of our lives, which I can’t imagine,
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kickingandscreaming
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« Reply #11 on: May 27, 2018, 04:37:23 AM »
Congratulations to the two of you!
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
StarryNight16
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« Reply #12 on: May 27, 2018, 05:49:24 AM »
It’s been a hell of a ride, and it ain’t over yet! Thanks again for your kind words, everyone,
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MooseMom
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« Reply #13 on: May 27, 2018, 08:41:10 AM »
This is wonderful news!  Just because your wife now has a new kidney doesn't mean there is no longer a place for you on this forum.  As a living donor, you have a LOT to offer, and of course we could learn a lot from your wife's new post transplant adventures.  So please do keep us posted, OK!

 :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly
« Reply #14 on: May 27, 2018, 09:02:09 AM »
That's FANTASTIC NEWS!!


Best of luck to the both of you!


    :flower;


Love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Marilee
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Hubby was a PD Person - I was 'support'

WWW
« Reply #15 on: May 28, 2018, 02:49:03 PM »
Wow, StarryNight16. That's wonderful!  :flower; I hope you and she recover without complications and start living a more normal life together. Congratulations on taking the plunge!
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As my hubby would say, "Don't let what you can't do get in the way of what you can."
justagirl2325
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« Reply #16 on: May 29, 2018, 12:06:43 PM »
Congrats!  It's an awesome feeling isn't it? (being a donor)

Good luck with your recovery and if you had the same surgery as me (laparoscopic) don't drink any fizzy pop like coke, etc for at least a month.
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lainiepop
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« Reply #17 on: May 29, 2018, 01:35:26 PM »
Fantastic news hope u and your wife are doing well xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
StarryNight16
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« Reply #18 on: May 31, 2018, 06:15:49 PM »
Home from the hospital now. It’s still a long road but I finally feel like we are walking in the right direction.

May we all be able to keep walking. My thanks to you all.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #19 on: June 02, 2018, 05:04:54 AM »
Enjoy your time back home!


 :flower;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
StarryNight16
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« Reply #20 on: June 02, 2018, 03:02:58 PM »
Thanks everyone for your kind words.

BUT WHY DOES RECOVERY FROM SURGERY TAKE SO DAMN LONG? It's been nine days, and I know, big surgery, give yourself time to rest, I get it, and I know I'm lucky that we were able to do this.

But for Pete's sake, I get tired walking up the stairs, and I can't even do laundry. Good thing we have family with us for two weeks, but after that we're on our own so I just hope I'm ready.
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justagirl2325
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« Reply #21 on: June 04, 2018, 11:15:34 AM »
Crazy eh?  My surgeon told me that the first month I would just find myself needing to nap just all of a sudden.  I thought to myself, weird that happens to some people.  Won't happen to me.  But then it did, for about four weeks like he said.  I would have to lie down at 1:30 one day, then 5:00 the next day, then be fine one day, back to napping at 3:00 the day after.  I was all over the map.  And I was going to bed at 9pm and sleeping until 7 or 8am daily.

Then it stopped.  All of a sudden I remember thinking hey, I haven't had a nap for a few days now.
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