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Author Topic: Thanks you what you accepted me to your site, I am from Russia.  (Read 3433 times)
borplotik
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« on: February 05, 2018, 02:53:52 AM »

Thanks you
kitkatz and Rerun, Administrators.
What you accepted me to your site.
My name is Boris. I am 44 ears old and I am from Russia (From St. Petersburg).
I work as a teacher. And I have 2 children.
I want to tell my story later  :'(   

I read a lot of posts on this site.
You are good people.
I'm glad to be a new member of this site  :waving;.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: February 05, 2018, 04:12:54 AM »

Welcome to the site Boris


  :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
borplotik
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« Reply #2 on: February 05, 2018, 05:09:13 AM »

Thank you so much.
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kristina
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« Reply #3 on: February 05, 2018, 05:14:28 AM »

Hello Boris and welcome to IHD,
St. Petersburg!!! What a wonderful city and what a wonderful culture!!!
I love the Hermitage and my favourite painting there is the self portrait by Anthony van Dyck.
I had a chance to admire it many years ago and it was absolutely inspiring!
Welcome again and best wishes from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Simon Dog
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« Reply #4 on: February 05, 2018, 07:21:24 AM »

Looking forward to hearing your story.
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SooMK
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« Reply #5 on: February 05, 2018, 07:55:50 AM »

Welcome Boris!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
borplotik
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« Reply #6 on: February 05, 2018, 08:02:02 AM »

Ok.
Thank you friends.
 It's hard for me to talk about this now.
 It was a misunderstanding. It was all together: Illegal actions - violations of human rights (lawlessness in medicine)  and family problem...
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Charlie B53
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« Reply #7 on: February 06, 2018, 05:36:53 AM »


Hi Boris and Welcome to our IHD 'Family'!

Unfortunate kidney disease respects no boundaries, neither Nation, Sex, or Religion.  There are far too many afflicted in Countries where treatment is not always so readily available.  We can blame Governments for not taking better care of their citizens.

I am glad that you have the opportunity and that you are able to join us not only to learn from us but to share your thoughts and experiences.

Take Care,

Charlie B53
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borplotik
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« Reply #8 on: February 07, 2018, 06:50:50 AM »

We can blame Governments for not taking better care of their citizens.
This is so in Russia.
To share your thoughts and experiences.
May be. Thank you, Charlie B53.
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Xplantdad
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Health is not valued till sickness comes. T.Fuller

« Reply #9 on: February 07, 2018, 11:53:51 AM »

Welcome, Boris! :thumbup;
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #10 on: February 17, 2018, 11:23:44 AM »

 :welcomesign;
Welcome to the site Boris.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
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