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lulu836
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« on: December 27, 2017, 02:57:34 PM »
Hello All......I found this board just a few weeks ago and the Holidays got moving so I didn't get back to do the Introduction thing.  I'm in NW Louisiana - yes Cajun Country- and it is WAY too cold today!.  HBP led me to dialysis and I have squashed it with fluid control.  I may get thirsty, I may get irritable because I"m thirsty but I don't pass out any more trying to get to my "dry weight".   :2thumbsup;

Happy  :bandance; to find you folks..........Sorry  :thumbdown; for the reason.but Oh well  :banghead;
« Last Edit: January 03, 2018, 12:45:33 PM by lulu836 » Logged
Of all the things I've lost, I miss my kidneys the most.
Charlie B53
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« Reply #1 on: December 27, 2017, 05:43:35 PM »

Hi Lulu!

Glad to have you join us here at IHD.

I well understand your thirst.  I am very hard on myself, restricting my fluids to only a single mouthful, than walk away.  That ain't always so easy when we've been so free most of our lives.

I have also had to learn to keep a bottle of Binders handy and taking a few with everything.  If I don't my phosporus begins climbing.  Skipping the potatoes, banana is tough.  I LOVE them! Wish there was a potassium binder.

Take Care,

Charlie B53
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Simon Dog
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« Reply #2 on: December 27, 2017, 10:43:04 PM »
Quote
I LOVE them! Wish there was a potassium binder.
It's called Kayexalate (reduces K, but not strictly a "binder").   Oral or enema; either form makes you crap your guts out.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: December 27, 2017, 11:14:47 PM »
Welcome to the site lulu836


   :welcomesign;




Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
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« Reply #4 on: December 28, 2017, 09:44:23 AM »
Welcome LuLu. Most of us are in the same boat, if that helps. No, huh?? In time, you will get all kinds of hints of things to do to help you out.

So,   :welcomesign;  to IHD and keep on asking questions.
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One day at a time, thats all I can do.
Paul
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That's another fine TARDIS you got me into Stanley
« Reply #5 on: December 28, 2017, 11:59:27 AM »

Hello Lulu. HBP is the swine that got me here too, runs in our family.
 :welcomesign;
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
MooseMom
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« Reply #6 on: December 28, 2017, 02:35:32 PM »
Oh, wow!  My family is from Calcasieu Parish, down south around Lake Charles/Welsh.  Small world, yeah?

Anyway, welcome to our community.  You will find plenty of people who will offer a lot of information and support.  I'm glad you found us.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lulu836
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« Reply #7 on: December 29, 2017, 04:01:58 PM »
Thanks for the "welcome" posts everyone.  I got so tired of the "fluid struggle" I made a spreadsheet for "weekends" and "weekdays" with the days divided into 4 hour segments.  Each segment has the amount of fluid I can consume then.  For special occasions i plan ahead so I can drink with everyone else present.
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Of all the things I've lost, I miss my kidneys the most.
lulu836
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« Reply #8 on: December 29, 2017, 10:04:16 PM »
Quote from: MooseMom on December 28, 2017, 02:35:32 PM
Oh, wow!  My family is from Calcasieu Parish, down south around Lake Charles/Welsh.  Small world, yeah?

Anyway, welcome to our community.  You will find plenty of people who will offer a lot of information and support.  I'm glad you found us.

Yes.........small world!  I was in Lake Charles last weeknd at La Barge du Lac.  Cool place.......good food. :2thumbsup;
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Of all the things I've lost, I miss my kidneys the most.
Blake nighsonger
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« Reply #9 on: December 30, 2017, 03:02:42 PM »
Welcome, love the culture there, live in Port Allen for near 15 yrs. worked on "the  barges" glad you found the sit.!!  tons of information         
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