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Author Topic: Hello I am John  (Read 2361 times)
johnbosh
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I am John from the US
« on: December 08, 2017, 03:19:11 AM »
Hi,

I am John. It started on December 2007.
I am on pertineal dialysis. It's hard, I hope I can gain some hope in here.
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10 year patient
Paul
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That's another fine TARDIS you got me into Stanley
« Reply #1 on: December 08, 2017, 11:15:52 AM »

 :waving; Hello John, welcome to the board. Glad you found us at last.

 :welcomesign;
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
PrimeTimer
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« Reply #2 on: December 08, 2017, 12:05:42 PM »
Welcome to ihd John!   :thumbup;   You will get a lot of support here. Think of a topic and I am sure you will find it. Or create a new topic of your choosing. 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: December 08, 2017, 12:53:31 PM »
Welcome to the site John


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #4 on: December 09, 2017, 05:44:09 AM »

Hi John!

Welcome to our IHD 'Family'.

I successfully did 3 1/2 years on PD until I screwed up and managed to give myself an infection from Hell.  Ended up losoing my catheter and had to start Hemo.

I was very fortunate PD works so well that I had no limitations on food and drink.  I did need lots of potassium supplement, but your labs should direct your Dr if you need anything.

Keep your hands Religiously CLEAN.  Take extra care with every fitting making connections, EVERY TIME!

The beautiful thing about PD is it may be easily 'tailored' for each patient.  The solution concentration, volume, length of dwell, and the number of daily exchanges.  Dialed in for you and your labs will soon reflect the improvements.  The exchanges become a daily routine.   I was tickled to begin using my Cycler, switching all my daily manual exchanges for the Cycler doing all the work for me while I slept.

Give it some time.  Things will start working out for you.

Take Care,

Charlie B53
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