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Author Topic: introduction  (Read 2857 times)
Mr.T
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« on: September 14, 2017, 12:37:59 PM »
Mr.T
On hemo, went to PD, it failed after 3years. I'm back on hemo. Like so many others I'm glad I can do it but that doesn't mean I like it. I was an active 72yr old on pd, now I'm a prisoner 3 days a week
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MooseMom
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« Reply #1 on: September 14, 2017, 12:48:12 PM »
Ugh, an all too familiar story, so you've come to the right place!  We're very glad you've joined and hope that being an IHD member will bring you some comfort.  Welcome!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kickingandscreaming
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« Reply #2 on: September 14, 2017, 01:59:46 PM »
 :welcomesign;  I too am a hater of in-center hemo.  Fortunately, PD is still working for me (at 76).  Sorry it stopped for you.  I'm only a year and a half into PD.  I really thrive on freedom, and in-center does feel like incarceration.  But as I'm frequently reminded, it beats the alternative.  Hang in there.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Charlie B53
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« Reply #3 on: September 14, 2017, 08:32:00 PM »

63 here.  3 1/2 good years on PD, until I screwed up and gave myself an infection from Hell. Gotta be MY Fault.

Now on Hemo in-center.  My cath works perfectly but the Clinic is a bit anxious to start poking into my fistula which hasn't hardly matured at all.  Despite all the ballooning, now Dr wants to open my arm and tie off all the collaterals that are diverting flow, keeping my fistula from growing properly.

I really Love my Hemo Cath!  Still NO Needles.  Someday that is going to end.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: September 15, 2017, 02:19:39 AM »
Welcome to the site Mr.T

   :welcomesign;

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
OldKritter
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« Reply #5 on: September 15, 2017, 05:34:56 AM »
welcome
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smartcookie
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LMSW
« Reply #6 on: September 15, 2017, 06:32:06 AM »
 :welcomesign;  I am glad you found us!  I hope you find what you are looking for here!
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
PrimeTimer
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« Reply #7 on: September 19, 2017, 06:17:52 PM »
Welcome to the site, Mr. T!  My husband is the one on dialysis and goes in center. Like anyone else he hates it. But he's made some friends there, some are other patients and some are staff members. He tells me of some of the antics that go on, for instance the guy that always tells the techs that it is HIS job to bring in the fluid and THEIR job to take it off...as he slid his pack of cigarettes under my husband's chair. And who got into trouble for that? My husband! And he doesn't smoke!

 >:D  Well anyway, if you want to get some ideas to break any boredom, go to the "General Discussion" on the site and read some of BobN's entries. Good luck, glad you're here and hope you stay out of trouble.  :rofl;

 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Charlie B53
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« Reply #8 on: September 20, 2017, 06:46:17 PM »

It is all in how you look at it.  While on PD it was neat that 'I' was taking care of myself.  The drawback was the time involved.  Manuals interrupted my day so so much.  The Cycler saved me my days but seriously cut into my Evenings.  Being connected all night was never a problem, my line was long enough I could go to the bathroom.  I could cap off during a dwell, go out in the garage and have a cigarette as I won't smoke in the house.

Hemo I have to give in and let others take care of me as I seriously doubt that I will be able to needle myself for quite some time, yet.  But I've found my being an early-riser it isn't that difficult to get up, go in, get done, and get out long before Noon.  I have the whole rest of my day free.  And Evenings!  And weekends!

Either method requires some major adjustment to our lives.  Which ever works out best for YOU is the right one.
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kristina
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« Reply #9 on: September 26, 2017, 04:10:53 AM »
Hello Mr. T.,
I am sorry how you feel right now and I do hope your body gets as used as is possible to hemo and believe me, the stress of hemo eases after a little while, when your body starts to "make friends" with the strict hemo-regime.
Best wishes and good luck from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
johnbosh
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I am John from the US
« Reply #10 on: December 08, 2017, 03:20:04 AM »
Welcome mr T, sorry to hear it is hard.
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10 year patient
Paul
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That's another fine TARDIS you got me into Stanley
« Reply #11 on: December 08, 2017, 11:13:53 AM »

 :waving; Welcome Mr.T.. I was supposed to go on PD too, but medical problems just before Dialysis started made this inadvisable, so I'm on HD.

 :welcomesign;
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
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