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Author Topic: Intro: Clara  (Read 2838 times)
Donna Clara
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« on: September 20, 2017, 06:19:29 AM »
I am Clara, a hemodialysis patient from the Western Cape in South Africa. Following a few years on hemodialysis in the 90's, I was blessed to receive a kidney from a live donor.  After 17 years, I have been back on HD since 2013.
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iolaire
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« Reply #1 on: September 20, 2017, 07:08:52 AM »
Welcome to the group. 

At some point if you don't mind please would you share the experience of having the transplant kidney fail?  As a new transplant recipient I'm interested in learning that part of the process.  I hope that I have a long run with the donor kidney but its something I now need to educate myself about.

I've visited Cape Town twice well on dialysis (and JNB on the first trip), most recently last year with two sessions at NRC CAPE TOWN CBD in City Bowl last year.  We enjoyed South Africa a good bit as indicated by our second trip, normally we don't really re-visit places but we headed back a second time last year.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Tora66
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« Reply #2 on: September 20, 2017, 10:49:53 AM »
Hi newbies! I'm sort of new myself!
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cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: September 20, 2017, 11:34:16 AM »
Welcome to the site Clara

   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #4 on: September 20, 2017, 06:25:40 PM »

Welcome to our IHD 'Family'.  We have members all over.  Kidney failure does not respect any race, or region, we all suffer together.

Sharing our experiences can make a huge difference as our Dr's really do not have a clue what we live with.

There is a wealth of information available here, if you cannot find anything simply ask, we will gladly try to help.

Take Care,

Charlie B53
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kristina
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« Reply #5 on: September 26, 2017, 04:16:51 AM »
Hello Clara and welcome to IHD and I send you my best wishes,
Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kickingandscreaming
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« Reply #6 on: September 26, 2017, 05:33:20 AM »
 :welcomesign; Clara
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
OldKritter
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« Reply #7 on: September 26, 2017, 11:26:47 AM »
welcome
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SooMK
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« Reply #8 on: September 30, 2017, 01:31:50 PM »
Hi Clara! Welcome!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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