Re: hello

[woodvale]

Hi
I,m Owen I,m 60 tomorrow. I,m on PD for the lastthree weeks. Sleep is difficult. What with the noise, lights, bleeping etc. I can snatch an hour every now and then.
The draining is like having your insides sucked out.

Any suggestions?

[cassandra]

Welcome to the site Owen


 


Have you tried different positions? Laying on your other side? On your belly? Etc.
You could also ask to go on tidal?


Good luck, Cas

[Charlie B53]

Welcome to IHD!

When I started PD my Cycler had LOTS of alarms as well as a lot of drain pain.  Seems I do not drain near as well as I fill.  My Nurse got permission to change my program to a Tidal which only drained a % out each cycle.  My last drain would pause on 'Hold' until I woke up and hit the 'Start' button again.  Since sitting vertical I would drain just fine.

Talk to your PD Nurse, see what adjustments can be made.

[Paul]

Hi Owen.

Just really posting to welcome you to the board, I cannot offer any advice on PD as I am on HD. I was supposed to be on PD, but other medical problems just before dialysis started made this inadvisable for me. However I can say that the reason you cannot sleep is probably partly due to the "newness" of the situation, when you get used to the noise and lights sleeping will probably get easier.

[kickingandscreaming]

There is a setting on the cycler to autodim the lights after a certain interval.  Then, I have learned that the tubing needs to be stretched out and smoothed out as much as possible to promote decent draining and filling--without alarms.   After 2 years (almost) on PD, I am able to sleep through the night (it didn't take 2 years).  Wish you good luck.

[Charlie B53]

K&S makes a good point about the hoses.  The 3 1/2 years I was on PD I UN-rolled the hose coils so they would lay straight.  I would lay the hose from the machine down and out the door partially up the hallway then back to bedside so it lays neat and straight. I could easily walk to the bathroom and back connected without bending or kinking the hose. Simply dropping the whole coil on the floor and leaving it all coiled did seem to restrict flow somewhat for me.

Hopefully you have that big thick book, the Cycler Manual.  You will have to search the machine settings.  I did leave the volume of the alarm up a ways, but all the way up is a bit unneeded.  That thing can almost wake the dead.