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Author Topic: Hi there  (Read 3112 times)
Cupcake
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a good year for Chevys

« on: August 26, 2017, 06:09:53 PM »

I am new to post but have been enjoying this site since I started PD last November. I have learned a lot from your experiences! I am hoping to get a kidney from my lovely sister-in-law this October. I was evaluated for transplant in April 2016, but rejected based on my weight and heart failure. Took awhile to get the nephrologist to start PD, but it has fixed my CHF, duh! I feel so much better!. A year ago I literally could not cross the street without stopping to rest, and now I'm walking 3 miles a day and swimming (don't tell my nephrologist)
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PD for 2 years then living donor transplant October 2018.
iolaire
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« Reply #1 on: August 26, 2017, 07:50:51 PM »

Welcome, good job with the exercise.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
MooseMom
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« Reply #2 on: August 26, 2017, 08:13:30 PM »

We're very glad you've decided to start posting!  :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: August 27, 2017, 03:04:47 AM »

Welcome to the site Cupcake

      :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #4 on: August 27, 2017, 06:18:25 AM »


Welcome to IHD!

The exercise is a great help/  Stay at it as long as you can, it really does make a huge difference in how you feel.

I just wish I had your energy. I have other issues that prevent much physical movement, so I manage as well as I can.  I get by.

Transplant will be a God sent miracle, restoring your systems almost unbelievably.  Give her a hug and great Thanks when it happens.

Take Care,

Charlie B53
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kickingandscreaming
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« Reply #5 on: August 27, 2017, 01:56:32 PM »

 :welcomesign; cupcake.  I too do PD, but it hasn't cured my heart issues.  You are very lucky. 
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Jean
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« Reply #6 on: August 27, 2017, 02:13:29 PM »

Hi Cupcake

Good for you on the exersizing, I am green with envy. Dont ever let it go again, I did and boy it made life hard, but, we shall overcome. Glad you decided to post and   :welcomesign; to IHD.
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One day at a time, thats all I can do.
OldKritter
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« Reply #7 on: August 28, 2017, 06:52:55 AM »

Hello and welcome

As long as you are swimming in a private pool and seal your site with a Tegaderm patch you are good to go.
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smartcookie
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LMSW

« Reply #8 on: August 28, 2017, 07:58:42 AM »

 :welcomesign;  I am glad you found us!  I hope your transplant journey goes well!
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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