Just got listed!

[Naynay99]

Hey.  Just wanted to say hi and let everyone know that I am now on the list.  As there was a lot of testing and stuff I had to do first, this feels like a big deal and a first step to a new tx, so I wanted to share some good-ish news for a change.

I don’t think other people uunderstand that u don’t automatically get listed for an organ just bc u need one, that it takes a bunch of testing and reqts first.  And it feels weird to be happy during such a shatty health thing going on, but at least it gives me some hope. 

I got an new Apple Watch as a gift from my parents, and it makes me feel more secure that I won’t miss a phone call.  I know that realistically I have many years to wait for a kidney, but u never know...

I hope my brother is still considering donating.  Things are already weird between us as we r not that close, so I am trying to not make things more awkward.  My friend was like “of course ur brother will donate, he’s ur brother, and u could die!”  But if that were always so then the tx list wouldn’t be so long.  And I want to make sure I don’t inadvertently make him feel some sort of pressure to donate.  Although he was the one who offered, I fear he will change his mind.   I feel like bc I’m not that sick yet ppl don’t see it as a priority.  But it’s my life so it’s pretty up there for me anyway.   I really want to do this preemptively before needing dialysis if at all possible. 

Anyway, I am one step closer to a transplant! I am on the list!!   Hopefully until that happens my 29 year old cadaver transplant kidney can hold on a bit longer.  My dietician put me on a restrictive diet to try to buy me some time.   It’s hard to follow but hopefully will help some. 

Anyhow, hope everyone is doing okay. 
Take care.

[kickingandscreaming]

Congratulations!  That's a great achievement.  Now the waiting begins.  Good luck.

[cassandra]

Very good news indeed, good luck my darling


   




Love, luck and strength, Cas

[Paul]

Congratulations. Good luck with (A) Your brother donating, or failing that (B) Not waiting too long for another "dead" kidney.

[iolaire]

Good luck