robertscz
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« on: November 02, 2017, 08:41:34 AM » |
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Hello, my donor is going to Tampa general for her last rounds of testing. She will be meeting the surgion, psychological testing, a chest xray and echo gram... Assuming everything goes as planned, how quickly afterwards can a surgery date be set up? Hoping to get this done on early December as we are both school teachers and can use winter break as a recovery period. Thanks
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justagirl2325
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« Reply #1 on: November 02, 2017, 10:00:58 AM » |
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They offered me and my husband a surgery date six weeks after my testing was complete. We're in Canada where these things tend to be slower.
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Simon Dog
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« Reply #2 on: November 02, 2017, 11:02:43 AM » |
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I guess the real question is "how long is the donor's testing good for before it has to be redone prior to transplant" as well as "how soon to get the finances verified and the ORs booked".
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robertscz
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« Reply #3 on: November 02, 2017, 11:22:44 AM » |
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I guess the real question is "how long is the donor's testing good for before it has to be redone prior to transplant" as well as "how soon to get the finances verified and the ORs booked".
Well I would hope and assume that the hospital would schedule the surgery prior to having to repeat the testing otherwise that would make no sense to have the donor testing done on the dates she is scheduled for
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Xplantdad
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Health is not valued till sickness comes. T.Fuller
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« Reply #4 on: November 02, 2017, 12:39:58 PM » |
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Robert,
I would think if everything checks out (Donor/insurance) it would be a matter of finding an open OR and coordinate with the transplant doc to get the surgery done?
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 Holly's Facebook Kidney page: https://www.facebook.com/Hollys.transplantpage/Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT! Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016 Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
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robertscz
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« Reply #5 on: November 08, 2017, 01:39:40 PM » |
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well i guess it doesnt matter... she passed everything with flying colors until the did a spot urine test and found 90mg of protein. nothing for her to be alarmed about but they will not operate on her unless it was 30 or under. im beyond depressed, i thought this was going to be over within a month. now i have to hope that my fiance who is 110 pounds somehow gets approved. i dont know if i can do this
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iolaire
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« Reply #6 on: November 08, 2017, 01:48:18 PM » |
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Sorry, good luck.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017. Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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Xplantdad
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« Reply #7 on: November 08, 2017, 03:47:57 PM » |
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Will they retest? Why so much protein?
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 Holly's Facebook Kidney page: https://www.facebook.com/Hollys.transplantpage/Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT! Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016 Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
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robertscz
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« Reply #8 on: November 08, 2017, 04:04:01 PM » |
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im not sure. the thing that gets me is they did a 24hr urine test about 5 weeks ago before they even scheduled her for her final tests, why in the world wouldnt they check for protein then instead of waiting until the ABSOLUTE last test? is there any way for her to lower it to the required 30?
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Rerun
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« Reply #9 on: November 08, 2017, 04:17:35 PM » |
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Sorry. It will come.
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Xplantdad
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« Reply #10 on: November 08, 2017, 04:27:47 PM » |
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Robert...that is a question that you should ask your transplant coordinator
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« Last Edit: November 08, 2017, 04:29:01 PM by Xplantdad »
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 Holly's Facebook Kidney page: https://www.facebook.com/Hollys.transplantpage/Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT! Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016 Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
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smartcookie
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« Reply #11 on: November 09, 2017, 06:57:19 AM » |
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I am so sorry, Robert! I hope your fiancé is a match!
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I am a renal social worker. I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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robertscz
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« Reply #12 on: November 09, 2017, 08:33:27 AM » |
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She is a match we know that already.. But now I'm worried about the testing since the first match didn't pass and we thought without a doubt she would... Does anyone know if they take size into account? Fiance is probably 115lbs and I am almost 220lb... Will that be OK?
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Cupcake
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a good year for Chevys
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« Reply #13 on: November 09, 2017, 05:28:18 PM » |
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I feel your pain, my donor is being worked up for an 'incidentaloma' that was found on the CT scan done during donor eval. Otherwise she'd be great a great match, I'm hoping for her sake it's a big fat nothing. I do know that when I told the transplant surgeon that he was gonna love my donor as she's skinny (and I'm not) and he asked how TALL she was. When I told him she's tall, like me, he said that would be fine; seemed like tall and skinny is fine; short and skinny probably not. Don't know if that helps your situation.
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PD for 2 years then living donor transplant October 2018.
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robertscz
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« Reply #14 on: November 15, 2017, 05:41:42 PM » |
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Well, here we go again.. Fiance got the call today that her urine and blood tests show that her kidneys are in great shape and she is now scheduled to go to Tampa for final testing Dec 18th.. Praying that this is one.. I will owe her for the rest of my life
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Xplantdad
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« Reply #15 on: November 15, 2017, 07:49:02 PM » |
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Let's hope for the best! We're in Oklahoma City tonight....Chicago tomorrow night!!
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 Holly's Facebook Kidney page: https://www.facebook.com/Hollys.transplantpage/Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT! Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016 Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
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iolaire
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« Reply #16 on: November 16, 2017, 05:49:47 AM » |
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Good luck on this round.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017. Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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robertscz
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« Reply #17 on: November 16, 2017, 07:52:42 AM » |
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thank you guys... we're assuming excellent health, shes never done anything "bad" in her life. never touched a cigarette or pot, rarely drinks. fingers crossed, i cant wait to get back to "normal"
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