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Author Topic: Totally devastated  (Read 2770 times)
KICKSTART
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In da House.

« on: May 27, 2008, 05:34:43 AM »

Well it was only yesterday i wrote of being top of the list for a move and really near my family ..well today all hopes have been dashed as someone has been moved to the top of the que in front of me. I rang the housing up and was told that nothing could be done regardless of what letters i send in from my specialist ,as i had the maximum number of points i could possibly get and this other person has been waiting longer than me and has just a great a need to move.

As you can imagine my frame of mind is not great as im already coping with newly diagnosed depression. None of 'these officials' have a clue what we have to cope with on a daily basis , let alone a set back like this.I just wonder how many times a person can bounce back before they throw in the towel altogether ?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
twirl
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« Reply #1 on: May 27, 2008, 05:40:15 AM »

 :'(
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willieandwinnie
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« Reply #2 on: May 27, 2008, 05:45:46 AM »

Oh KICKSTART, I'm so sorry to hear this.  :cuddle; Your going to get that call for a new place and it will be a better place. You'll see.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
twirl
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« Reply #3 on: May 27, 2008, 05:52:51 AM »

kickstart   i just reread your first post on this and you know you could come out ahead, start getting things organized and ready to go and when you get your next call you can laugh in their faces because you are ready to walk out that door
go eat a nice dinner, have a drink ( well, a small one) and celebrate
it will happen
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paris
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« Reply #4 on: May 27, 2008, 06:39:43 AM »

I am sorry, Kickstart. I know how important this move is to you.  You have been waiting patiently. I pray your turn is next.  You certainly deserve some good news.  Take care, we love you :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
celtic warrior
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« Reply #5 on: May 27, 2008, 07:02:05 AM »

`ello KICKSTART !!

What I CAN understand is how you must be feelin right now :(
What I CAN`T understand is how the Housing did not know about this other person BEFORE telling you that you were # 1  on the list.. :rant;

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Bajanne
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« Reply #6 on: May 27, 2008, 07:13:16 AM »

You are not throwing in any towel, unless it is into the laundry basket when you get back from the beach!  i am so sorry that you are going through this, but always remember you have hundreds of people all over the world rooting for you.  :grouphug; Let that help you to get through this.  :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sluff
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« Reply #7 on: May 27, 2008, 09:02:00 AM »

I understand how you feel KS, everyday I struggle to get out of bed and try to put my best foot forward and I'm gonna give it my best. Everyday i go home and sometimes like today I stay home because something always sets me back. I have had some real dark moments but somehow we seem to just keep on keeping on as (Goofynina would say). Please take care of yourself today, be a little selfish, try to rest, have a good cry, and when you have done all that, just know we are praying for you and we are in your corner and your feelings are important to all those who reply to your posts. Some days that may be all we have. Tomorrow is a new day.   :grouphug;  :grouphug;
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monrein
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« Reply #8 on: May 27, 2008, 09:21:26 AM »

Kicks, that what I imagine this feels like for you, kicks in the gut.   It's not fair, it's not right and it sux.  We're all rooting for you to get moved soon and I wish we could all march down to that office and MAKE them understand this struggle they have no idea about.  I'm so sorry about this setback for you. :cuddle; :grouphug; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
rose1999
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« Reply #9 on: May 27, 2008, 09:24:00 AM »

I agree with Celtic Warrior - how come they've only just noticed this person with greater need?  ??? You should get on to your local Councillor and MP - stir them up a bit, you get nothing in this country (UK) for sitting back quietly when it comes to social housing.  This stinks - suddenly finding someone who is ahead of you, I don't believe it  >:(

Anyway no throwing in towels, it's seconds away round two   :Kit n Stik;

:grouphug;
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okarol
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« Reply #10 on: May 27, 2008, 09:54:19 AM »

 :cuddle; I am so sorry K.
I too wonder why they would get your hopes up one day then the next you've been pre-empted.
Something's fishy if you ask me.
I would keep asking questions. Don't give in!  :boxing;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kidney4traci
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« Reply #11 on: May 27, 2008, 10:53:08 AM »

I agree, don't give in!  Get KitKat's big stick and go knock some heads around until they get you to the top of that list!!!! :Kit n Stik;  Get some documentation together and challenge this decision.  Maybe that will help?? 
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Married - three children.
Alports female, diagnosed ESRD 10/04
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6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
mcjane
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« Reply #12 on: May 27, 2008, 12:24:17 PM »

When one door closes another always opens to something better.

Your better day is coming, soon.



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Ang
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« Reply #13 on: May 27, 2008, 03:52:49 PM »

sorry  to  hear  about  this  set  back  KS,hopefully  your time will  come  real  soon.
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live  life  to  the  full  and you won't  die  wondering
David13
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« Reply #14 on: May 27, 2008, 04:01:54 PM »

What I don't understand is that if you were first on the list, but this other person had been on longer, why weren't they first on the list to begin with?   In other words, why did they get your hopes up for nothing?  I think you need to ask some questions and take along kitkatz's big stick to use until you get some answers!
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
kitkatz
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« Reply #15 on: May 27, 2008, 04:31:40 PM »

 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kellyt
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« Reply #16 on: May 27, 2008, 04:40:57 PM »

 :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
RichardMEL
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« Reply #17 on: May 28, 2008, 01:25:15 AM »

oh that @*(_*_#@_@#*_@ sucks!!!

I am so sorry KS.... :( that's like getting THE call and getting all ready and pumped and then told "oh no, sorry you can't have this one"

that really bites. I am very unhappy for you..

*big hug sent*
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KICKSTART
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In da House.

« Reply #18 on: May 28, 2008, 07:38:02 AM »

Well i went into the office today armed with 2 further letters , 1 from my specialist and 1 from my renal home nurse both saying as strongly as possible how i needed this move and how my health was being stressed even more and guess what ..the lady i needed to see was 'in a meeting' suprise suprise !! When i said i would wait ,i was told it would be quite some time if i could even then get to see her. So i explained the situation to the other lady on the desk , but no joy , they wont budge ..not a cat in hells chance. I know what you are all saying about not giving up but im going to have to . You see houses only become available over here with this housing company once every month and i just cant keep going every month wondering if i will get one next time. I need to settle down , turn my house into a home not a stop gap , and if i spend what little money i have on this house , then i cant afford to spend money on another one if it comes empty. So i really have to decide that im going to stay here now , than have my hopes raised again ..i waited 3 years on the list for a suitable house near my family ..it could be another 3 yrs before another comes up ..who knows !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
rose1999
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« Reply #19 on: May 28, 2008, 08:10:56 AM »

Well Kickstart if that's what you have decided then I wish you all the luck and happiness in the world.  But I know I'd not give up until I'd written to my MP, the Press and local Councillors - honestly our MP (Philip Dunne) would not sit back and let this happen (and I didn't vote for him so am not bigging him up!). Isn't there anyone who will take this up for you?  I wish I lived nearer. It's an utter disgrace.  :rant; 

Wishing you all the very best, I'm sure you've made the right decision for you - I do understand where you're coming from  :grouphug;
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