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Author Topic: Tribute to Ninanna  (Read 4542 times)
cassandra
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When all else fails run in circles, shout loudly

« on: January 26, 2016, 04:50:10 PM »

With great sadness I share the news of the passing of Ninanna 13' September 2014. I'll ask admin to move some posts to this thread concerning this.
So sad.
« Last Edit: January 29, 2016, 01:27:15 PM by kitkatz » Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #1 on: January 26, 2016, 08:01:37 PM »


"At least some good can come of this for future patients".
-Ninanna (see her last post dated September 08, 2014)

That is why I had read her posts. Seemed that despite challenges and no matter what was to become of it, she put herself out there to help others. She sweetened our little part of the world here. Rest in peace, Ninnana.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Charlie B53
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« Reply #2 on: January 27, 2016, 11:22:12 AM »



I was so looking forward to hearing of her getting better.

I am at a loss for words at learning of her passing.  She held such great promise.  For everyone.
Ninanna will be missed.
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Deanne
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« Reply #3 on: January 27, 2016, 01:22:02 PM »

That news makes me very sad. I found her obituary at http://www.ottumwaeveningpost.com/9437/89872/a/obituaries-holly-carroll

I hope it's OK to post it here. I was able to find it on a public source very easily, so it puts my mind at ease about sharing it (considering her family's privacy).

Content in case the link stops working:

 

Holly Carroll

September 25, 2014 


OTTUMWA – Holly Danielle Carroll, 29, of Baltimore, MD, formerly of Ottumwa, passed away September 13, 2014 at the University of Maryland Medical Center in Baltimore, MD.

She was born September 26, 1984 in Ottumwa to Kevin and Linda Stookesberry Carroll.

Holly was a 2003 graduate of Ottumwa High School, where she was a member of the OHS Tennis Team. During high school, Holly worked at North Hy-Vee. She earned a Chemical Engineering Degree from Iowa State University, and had worked for Merck, Life Cell and Johnson & Johnson in previous years. She was currently employed at Osiris Therapeutics Inc. in Columbia, MD where she loved working and learning.

She was very involved in the Living Legacy Foundation of Maryland, a non-profit organization that facilitates the life-saving process of organ and tissue donation.

Holly enjoyed reading and spending time with Jim, her fiance, family and friends and also their beloved cats, Marvin and Mister and dog, Fidel.

Surviving are her parents, Kevin and Linda Carroll of Ottumwa; her brother, Casey Keith Carroll (Becca Aguilar) of Fremont; fiancé Jim Lovell of Baltimore, MD; grandparents, Don and Bonnie Stookesberry and Richard H. “Dick” Carroll all of Ottumwa; several aunts, uncles and many cousins.

She was preceded in death by her grandmother, Pat Carroll.

Her body has been cremated.

A celebration of Holly’s journey will be held at 11 a.m. Friday, October 3, 2014 at Bridge View Center in Ottumwa with Larry Ulrich officiating.

Visitation with the family present will be 9:30 a.m. until the time of the service.

In lieu of flowers, memorials may be made to Living Legacy Foundation of Maryland, 1730 Twin Springs, Rd. Suite 200, Baltimore, MD 21227

Reece Funeral Home is in charge of arrangements.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
PatDowns
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Celebrating 60th B'Day. 12/26/15

« Reply #4 on: January 27, 2016, 03:12:48 PM »

That news makes me very sad. I found her obituary at http://www.ottumwaeveningpost.com/9437/89872/a/obituaries-holly-carroll

I hope it's OK to post it here. I was able to find it on a public source very easily, so it puts my mind at ease about sharing it (considering her family's privacy).

Content in case the link stops working:


Thank you for posting, Deanne.  It is appropriate and appreciated.  Holly was an amazing young woman and sadly, her story highlights the randomness of Life.  Former IHDer, Cariad, went through the same procedure and to the best of my knowledge is still doing extremely well.  Holly and her family will be in my prayers.  I also hope others on here will consider making a donation to the Living Legacy Foundation of Maryland so Holly's family will know she had the support and love of her "cyber" family.
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
Deanne
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« Reply #5 on: January 27, 2016, 03:32:26 PM »

Thanks PatDowns. I'm reporting to moderator so they will consider adding a tribute for her and maybe moving her obit to it. The information that the medical community gained from her participation in this study will hopefully save others. I think that deserves a great deal of recognition.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
PatDowns
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Celebrating 60th B'Day. 12/26/15

« Reply #6 on: January 27, 2016, 04:01:46 PM »

Hi inga,

I hate to be the bearer of bad news but Ninanna passed away shortly after her last post.  I really didn't want to say anything here out of respect for her familiy's privacy (who may not know about an account here) but I learned through social media.  I'm really sorry.

Thank you for letting us know, UT.  Ninanna had such a positive impact on here.  While so frustrating and sad to learn she passed away, at least there is an opportunity for those who deeply cared about her to have closure.
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
MooseMom
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« Reply #7 on: January 28, 2016, 10:16:04 AM »

I am so very sad to hear of her passing and am so grateful that you told us, UT.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly

« Reply #8 on: January 29, 2016, 07:58:11 AM »

I'm very sorry too, and thank you for saying it.


            :grouphug;    :grouphug;      :grouphug;               


Lots of love and strength to all who got to care for Ninanna.
« Last Edit: January 29, 2016, 01:28:37 PM by kitkatz » Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
SooMK
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« Reply #9 on: January 30, 2016, 10:05:51 AM »

Oh man, I was just thinking of her last week and how she hadn't posted it so long and wondering how she was doing. This is just terrible. I am so sorry to hear this.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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