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Fabkiwi06
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« on: February 01, 2016, 01:46:17 AM »
Hello fellow dialysis people.

My name is Kieran, but I go by Kiwi. I'm 27, Nashville based, and been on dialysis since October. Was not expecting to go on it for at least another decade... I thought I had the flu. Guess not.

Currently I'm on CAPD and completely sick of the routine. Trying to get some forward motion on a transplant.

Kept seeing this board pop up when I'd Google my kidney related questions. I've really appreciate the wealth of info you all have collected here. Looking forward to meeting you all.
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surprise kidney failure - oct. 2015
emergency hemo - oct. 2015
switched to pd - dec. 2015
transplant list - apr. 2016
nursey66
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« Reply #1 on: February 01, 2016, 02:46:08 AM »
Welcome ! My hubby has the ESRD, is on his 2nd transplant 4 months out . I have learned so much from this site ! It is amazing .
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Vt Big Rig
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« Reply #2 on: February 01, 2016, 04:59:54 AM »
Welcome to the site.

Here you will find information, answer to many of the questions  you may have, and best of all .... a place to rant and/or make friends with people in a similar situation. I know in my case, even with a VERY supportive wife and family I often felt all alone.

Good luck on your journey.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: February 01, 2016, 05:21:40 AM »
Welcome to the site Kiwi

    :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
SooMK
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« Reply #4 on: February 01, 2016, 05:43:02 AM »
Hello and welcome Kiwi!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Michael Murphy
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« Reply #5 on: February 01, 2016, 05:47:29 AM »
Welcome, good luck with the new life style, I am sorry that you have ESRD but you have come to a good place lots of info, lots of compassion,  every one just trying to get by.  This place is helping keep my sanity I hope you get a lot from this site.
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Fabkiwi06
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« Reply #6 on: February 01, 2016, 02:44:35 PM »
Thank you all. I've been enjoying reading the posts. I really appreciate how realistic you are and how everyone is keeping a good sense of humor about everything. My family can't understand how I can joke about my situation so easily. Oh well...
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surprise kidney failure - oct. 2015
emergency hemo - oct. 2015
switched to pd - dec. 2015
transplant list - apr. 2016
micron
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« Reply #7 on: February 02, 2016, 11:55:28 AM »
welcome, humor is so much better then the other options!  Good luck adjusting. This site has been invaluable to me (long before I registered) to get information.
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Charlie B53
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« Reply #8 on: February 02, 2016, 03:20:41 PM »

Welcome to the site!

I did manual PD exchanges 4 times a day for over a year.  They really screwed up my doing much of anything or going very far for long as I always HAD TO take along a bag or get back home to do my exchanges.

Switched to using the Cycler over a year ago which freed me from all those daily intrusions.  Connecting once in the early evening and staying on until morning works out quite well.  I cuts my summer evenings out in the yard short but it is a trade off.  I could stay out later only to have to stay on longer in the mornings.  Not bad if I do not have to be somewhere.

My point is with PD you have the means to set a livable schedule and adjust to life within that schedule.  It is what you make it.  And you can make it work.

Stay with us, post often and let us know how you are doing, or if you have any questions we may be helpful with.

Take Care,

Charlie B53
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