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Author Topic: Second time electricity stops while dialysing  (Read 11939 times)
cassandra
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When all else fails run in circles, shout loudly

« Reply #25 on: January 14, 2016, 03:31:31 PM »

You're fast! I was just responding and saw that you found one. For anyone else looking, several are available on Amazon. Do a search for "rechargeable emergency flashlight"

Yeah one of my 'weak' spots is a Amazon adiction. I found them there too. But it ís a brilliant solution. Not to the power cut, but when you have one. Not finding my glasses was the big one, and with the emergency light I can see, get my blood back, disconnect and try again another day.

      :angel;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Simon Dog
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« Reply #26 on: January 14, 2016, 06:39:47 PM »

A Honda is close to $1000. Generc around $750.  Pricey.

And with the restrictions on rear  bumpers installing permanently on trailer is a task i have not figured out.
The $1000 Honda is the small 120v unit.   I paid $3999 for the EU6500is (replaced by the newer EU7000is) portable 220v inverter generator, so "pricey" is relative.  My wife made the mistake of telling me "just buy the best one you can find".
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Vt Big Rig
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« Reply #27 on: January 15, 2016, 05:57:38 AM »


The $1000 Honda is the small 120v unit.   I paid $3999 for the EU6500is (replaced by the newer EU7000is) portable 220v inverter generator, so "pricey" is relative.  My wife made the mistake of telling me "just buy the best one you can find".

And if I was looking for one for the house I would also invest in that ... But I have been seeking something a little more portable.

On a side note ...don't you love it when they say "get what you want". :rofl; :rofl;
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Charlie B53
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« Reply #28 on: January 15, 2016, 07:03:45 AM »


Salesmen.  I hate them.  Working in various shops over the years I've found Salesmen promise the Customer almost impossible changes to be made on their auto/motorcycle/boat, etc.  Then simply hands it over to Service to figure out HOW, and then to do it, and not spend any of the Companies money in the process.  Near impossible, yet we do it.

Salesmen, try to sell you something you don't really want, don't need, cannot afford, because they work on COMMISSION.

Salesmen, the first thing they want to know is how much do you want to spend.  Immediately try to figure out ways to increase that amount in order to increase their commission

Salesmen...........


This could be the start of a Best-Selling Book!
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justagirl2325
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« Reply #29 on: January 20, 2016, 08:28:12 AM »

We live in a rural area and have ok/not great hydro.  We've had a couple of scary power failures when on home-hemo.  First time we were not prepared, pitch black looking for a flashlight.  I now have a hug one that will light up the whole room.  Luckily the machine has a 15 minute battery back up so it can handle short times when the power flickers on and off - this happens a lot. 

We have had to have him go back to the hospital for dialysis when the power was out over two days.

We have a large generator (gas powered) that we could wire in I guess but we haven't for now.
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PrimeTimer
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« Reply #30 on: January 20, 2016, 12:20:22 PM »

We live in a rural area and have ok/not great hydro.  We've had a couple of scary power failures when on home-hemo.  First time we were not prepared, pitch black looking for a flashlight.  I now have a hug one that will light up the whole room.  Luckily the machine has a 15 minute battery back up so it can handle short times when the power flickers on and off - this happens a lot. 

We have had to have him go back to the hospital for dialysis when the power was out over two days.

We have a large generator (gas powered) that we could wire in I guess but we haven't for now.
Wind, hard rains, lightening strikes, snow and wreckless drivers hitting power poles don't help. Promise not to ever place that gas-powered generator indoors! I know of an elderly couple who did that during a snowstorm and they died in their sleep from the fumes. They had brought it up from their basement and set it at the top of the stairs facing into their kitchen. They died watching tv in their living room. 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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