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Author Topic: Hi I'm New  (Read 2589 times)
Johnnny58
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« on: December 03, 2015, 05:06:37 PM »
Hi I'm New to this site and look forward to learning a lot about my brother's disease and upcoming dialysis treatment, as well as talking with people here.  Thank you for making this site available to patients and families. 
     I am a 59 year old man from Long Island, NY, a retired state worker.  My brother lives in Virginia and has kidney failure, had a port placed in his arm and it is in the process of maturing. I have been staying by him for a few weeks, but I will go home soon.  He lives with his daughter who has been taking him to doctors etc. 
    Anyway it's good to be here. Howdy!  :-)
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Zach
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"Still crazy after all these years."
« Reply #1 on: December 03, 2015, 07:08:22 PM »
Hi Johnnny58,

Glad to have you here!
Caring family members make a big difference for those of us on dialysis.

Regards,
--Zach
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
renalwife
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« Reply #2 on: December 03, 2015, 07:49:30 PM »

Hi, Johnny 28. 

You are a good brother.  Keep is in touch.  We really like to know how everyone is doing. 

There are members where who have been through nearly everything,

 and if one hasn't the other member has.  So lots of information and knowledge here.
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Darthvadar
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« Reply #3 on: December 04, 2015, 01:01:33 AM »
Hi Johnny....

 :welcomesign; to IHD.... Keep us posted about what's happening in your kidney 'journey'... Keep visiting and posting... We're a friendly bunch, and we 'get it'....

Darth... Moderator....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
del
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del and willowtreewren meet
« Reply #4 on: December 04, 2015, 05:05:22 AM »
Welcome!! :welcomesign;
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Don't take your organs to heaven.  Heaven knows we need them here.
Vt Big Rig
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« Reply #5 on: December 04, 2015, 05:13:53 AM »
Welcome to the site Johnny ......

As others have said ask any question you want. Somebody on here has experienced it.

Best Wishes for your brother's success. Tell him about the site and get him to join...... :beer1;
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: December 04, 2015, 05:45:11 AM »
Welcome to the site Johnnny58

    :welcomesign;

Take care, and love to you, and your brother, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
stayingalive
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« Reply #7 on: December 04, 2015, 07:21:17 AM »
Welcome to the group!!   I myself have just joined recently.  They seem like a strange bunch here but in a good way.  Know what I mean?  ;D  Glad that you're interested in knowing a bit about your brothers path.  Please encourage him and his daughter to join as the knowledge and friendship to be gained here could help their process go smoother.  Lets GO IHD!!   :bandance; :bandance;  HOOT!! HOOT!!   :bandance; :bandance;
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SMILE!!  CAPD since June 2014
Polysystic kidney disease
Darthvadar
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« Reply #8 on: December 04, 2015, 11:56:38 AM »
'Strange'???, Staying alive???...

You silver-tongued devil... You say the nicest things!!!... Such a sweet compliment!!!.... It's so nice to have one's foibles appreciated!...  LOL!!!!!.....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
SooMK
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« Reply #9 on: December 05, 2015, 12:06:36 PM »
Welcome to IHD Johnny.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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