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stayingalive
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« on: November 16, 2015, 03:48:57 AM »

Hello to one and all.   I have the honor of joining IHD and learning about different dialysis and hopefully to help support the others that are members or just visiting.  I hope to be around for quite a while   THANK YOU for letting me become part of what I believe is the best site for dialysis patients on the web!!!
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SMILE!!  CAPD since June 2014
Polysystic kidney disease
SooMK
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« Reply #1 on: November 16, 2015, 05:13:05 AM »

Welcome!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Michael Murphy
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« Reply #2 on: November 16, 2015, 05:23:43 AM »

Welcome, the best part of this site is it acts a a repository of dialysis knowledge and ESRD experience. 
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Darthvadar
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« Reply #3 on: November 16, 2015, 05:50:06 AM »

Hello StayingAlive... (Great name, by the way!)...  :welcomesign; to IHD....

You'll find us a friendly lot, and I think you'll enjoy being a part of our community...

Visit, and post often.... We like the chatty ones!!!...

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
stayingalive
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« Reply #4 on: November 16, 2015, 07:17:11 AM »

 a little more about me.......
Polycystic kidney disease inherited from father.  Father had dialysis at home in the mid-seventies.  A whale of a machine compared to todays.  He had a transplant in 1976.  Unfortunately both parents died within a short time of each other in 1977.  Two brothers and one sister succumbed to this disease Another brother and sister that also are on dialysis ....sister on hemo...brother on PD at home just like me.  I started PD with fresinius in June of 2014 when kidney strength was about 18%  Just felt tired and worn out all the time and told my neph it was time.  AWESOME nephrologist and staff at my clinic at this time.  Don't worry...I told them if I had problems or trouble they would hear about it and if not fixed to my satisfaction I would find services elsewhere.  Wouldn't change a thing at this time as clinic and nurses are very helpful.  Hope this gets you started and anymore questions I would be happy to answer.  Don't know a lot about hemo as I only read about it for future reference and also because my brothers where doing it and I wanted some knowledge about it in case I need to start it also.
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SMILE!!  CAPD since June 2014
Polysystic kidney disease
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