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Author Topic: UK home haemodialysis patients  (Read 4328 times)
Sugarlump
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10 years on and off dialysis
« on: July 19, 2015, 01:00:55 AM »
I have just recently discovered that you are entitled to a substantial council tax discount if you have a room primarily used for medical purposes such as dialysis!!!
How comes neither my Unit or the Council had told me???
Does anyone else get this discount? (Not sure if it applies to PD patients as well?)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: July 19, 2015, 04:23:46 AM »
Yes Sugar your council tax goes a band down when a room of your house is used solely for medical use. PD, HhD whatever. The council comes round to check. Your unit should have told you. Your unit should also arrange that you are registered on a 'priority list' for your utilities.
When the utilities plan work they have to inform you, and also have to make sure yourservices are restored as quickly as poss. (They actually do this)

I'm really sorry you weren't informed about this, but blame your unit, local KPA?

Love, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis
« Reply #2 on: July 19, 2015, 09:36:53 AM »
Fortunately, once they've been to check (Tuesday) they will backdate it up to 2 years!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Simon Dog
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« Reply #3 on: July 19, 2015, 10:05:13 AM »
Quote
When the utilities plan work they have to inform you, and also have to make sure your services are restored as quickly as poss. (They actually do this)
They do this many places in the US as well.  I get notified of electrical work, and am on the top of the list for restorations in my area.
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Sugarlump
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10 years on and off dialysis
« Reply #4 on: July 20, 2015, 01:09:35 AM »
We do get a partial refund towards electricity costs works out at about £72 a year currently.
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #5 on: July 24, 2015, 09:03:42 AM »
Quote from: Sugarlump on July 20, 2015, 01:09:35 AM
We do get a partial refund towards electricity costs works out at about £72 a year currently.

I keep forgetting to apply for this as I need the pence per m3 and the contract of the electricity company, and the amount of hours D etc.
I might try next week
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis
« Reply #6 on: July 25, 2015, 12:18:13 AM »
Fortunately our unit does it for us cos I have real trouble understanding electricity bills and tariffs and suchlike!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
JW77
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« Reply #7 on: September 04, 2015, 01:34:34 AM »
YES... Visit by a council officer and the property is reduced by 1 band.  Applies to both privately owned and rented properties.
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Creator of London Kidney Social: https://www.facebook.com/groups/LondonKidneySocial/

Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

Founder of Kites4Kidneys - Start making your kites for WKD 2015..
https://www.facebook.com/kites4kidneys
JW77
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« Reply #8 on: September 04, 2015, 02:49:59 AM »
We also send quarterly bills to the accounts department who reimburse a sum of money.  Don't ask me how its calculated, its to do with hours/wattage of the machine and maybe a bit for water!..
Logged
Creator of London Kidney Social: https://www.facebook.com/groups/LondonKidneySocial/

Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

Founder of Kites4Kidneys - Start making your kites for WKD 2015..
https://www.facebook.com/kites4kidneys
Sugarlump
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10 years on and off dialysis
« Reply #9 on: September 04, 2015, 06:42:23 AM »
Quote from: JW77 on September 04, 2015, 02:49:59 AM
We also send quarterly bills to the accounts department who reimburse a sum of money.  Don't ask me how its calculated, its to do with hours/wattage of the machine and maybe a bit for water!..

Roughly what does that work out a quarter?
So far (Jan > August) I have only received £17!!!!!

I reckon that must be wrong surely since it's for elec and water extra costs?!!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
JW77
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« Reply #10 on: September 21, 2015, 03:10:01 PM »
My dad pays the bills, so he deals with it, but this quarter the amount was close to that off the bill (obviously the bills go down in the summer)


I'd contact the NKF pronto if you can't get a straight answer from the hospital.

How much is your bill?
Logged
Creator of London Kidney Social: https://www.facebook.com/groups/LondonKidneySocial/

Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

Founder of Kites4Kidneys - Start making your kites for WKD 2015..
https://www.facebook.com/kites4kidneys
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #11 on: October 06, 2015, 11:48:16 AM »
Our bills have gone up since machine installed (Usually about £150 a quarter but last one £220.(All electric house)
Not sure about water bill as pay a standing order for £25 a month and they adjust it at end of year.
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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