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Amv
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« on: August 14, 2015, 02:08:47 PM »
Hi everyone.  My father, who went to his primary care physician regularly, was referred to a nephrologist suddenly. He was diagnosed with kidney disease and had to start dialysis.  He had PD catether surgery and AV fistula surgery.  I'm hoping this forum will allow me to learn as much as I can as I have been mostly disappointed by most physicians.






EDITED:Move to introduce yourself area- kitkatz,Admin
« Last Edit: August 26, 2015, 09:08:04 PM by kitkatz » Logged
Rerun
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Going through life tied to a chair!
« Reply #1 on: August 14, 2015, 04:49:16 PM »
Hi Amy and Welcome to IHD.  Yes, you will find answers here.  Keep reading.  You are a wonderful daughter!

Welcome - Rerun, Admin.

               :welcomesign;
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cassandra
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When all else fails run in circles, shout loudly
« Reply #2 on: August 15, 2015, 04:05:45 PM »
Welcome to the site Amv

     :welcomesign;

I hope your dad feels better soon

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Vt Big Rig
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« Reply #3 on: August 16, 2015, 04:30:59 AM »
My usual greeting is I am glad you found the site, yet very sorry for you that you had to. :welcomesign;

You will find answers to your questions  here, just ask.

Make your neph get you comfortable. Keep asking him questions until you are. He can take the few minutes to answer your questions.

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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
SooMK
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« Reply #4 on: August 16, 2015, 09:23:17 AM »
Welcome!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
LisaBart
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« Reply #5 on: September 13, 2015, 03:14:05 AM »
Hi
It takes time to understand and get information from doctors of all kinds....write down your questions and warn them you will be asking...if they don't help you generally a nurse will know just as much.
Good luck.
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Darthvadar
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« Reply #6 on: September 13, 2015, 04:51:09 AM »
Hello, and  :welcomesign; to IHD...

I fully understand your concern.. I was my mum's carer for many years...

Hope you stay around and post often...

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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