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RenallyChallenged
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Hi!
« on: September 20, 2015, 03:55:02 PM »
Hey there. Just posting to introduce myself. I'm a 24 year old college student. I lost my kidneys back in 2008 to a lupus flareup. I got a transplant in 2009 after about a year and a half of in-center dialysis (which I hated), which I lost in July of this year. Now I"m back on dialysis, but getting ready to train for NxStage. I'm excited. This week is my last week in-center. Can't wait for it to be over. I've always lurked here, especially back when I first lost my kidneys in 2008. This site was always helpful in getting through it all. I figured it was time I stopped lurking and joined up. So, nice to meet you all. Here's hoping my time here is awesome.
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March 2008 - Kidney Failure due to Lupus Nephritis
September 2009 - Kidney Transplant
July 2015 - Back on dialysis

Currently training for NxStage Home Hemo.
Rerun
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Going through life tied to a chair!
« Reply #1 on: September 20, 2015, 03:58:42 PM »
Hi "RC"  I'm so glad you joined.  I'm glad you are going to do Next Stage. 

Stayed Tuned to IHD

Welcome - Rerun, Admin.

 :welcomesign; 
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Michael Murphy
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« Reply #2 on: September 20, 2015, 06:58:48 PM »
Welcome, to the IHD family where every one is dealing with the same crap.  I hope you find this site as helpful as I have.  A place where we all face the same demons.
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Darthvadar
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« Reply #3 on: September 21, 2015, 01:10:59 AM »
Hello, and  :welcomesign; to our little community...

Visit us regularly, and 0ost often... You 'll get lots of support here...

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Vt Big Rig
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« Reply #4 on: September 21, 2015, 04:44:17 AM »
Welcome to the site.

I guess you are not "new" to dialysis but just new to NxStage.

Still should be lost of new stuff for you to learn and discuss here.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
SooMK
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« Reply #5 on: September 21, 2015, 04:52:46 AM »
Welcome!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Zach
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"Still crazy after all these years."
« Reply #6 on: September 21, 2015, 08:07:48 AM »
It's good to have you join our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
PrimeTimer
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« Reply #7 on: September 21, 2015, 07:07:55 PM »
Welcome, RenallyChallenged!  Good luck with your training on the NxStage cycler! You will like it and so will your body.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
iolaire
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« Reply #8 on: September 22, 2015, 06:02:00 AM »
Welcome.  I also am loosing my kidneys due to lupus, but I was lucky enough to have a 20 year decline after bad active lupus in high school before my kidneys were at a point where I needed dialysis.  I'm happy to say I've not have active lupus since the early 1990s, its hard to say when it really went into remission since I was treated with Cytoxan throughout college and Plaquenil until early 2000 when a doctor finally said why are you still on it and phased me off with a wait and see mentality...

Good luck on NxStage, it sure sounds like people feel its the best treatment.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
RenallyChallenged
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« Reply #9 on: September 24, 2015, 09:55:15 AM »
Thanks for the well wishes everyone. It's nice to meet you all. Sorry I didn't reply earlier, I've just been busy lately. Tomorrow is my last day doing in-center dialysis. Can't wait to start training.

Quote from: iolaire on September 22, 2015, 06:02:00 AM
Welcome.  I also am loosing my kidneys due to lupus, but I was lucky enough to have a 20 year decline after bad active lupus in high school before my kidneys were at a point where I needed dialysis.  I'm happy to say I've not have active lupus since the early 1990s, its hard to say when it really went into remission since I was treated with Cytoxan throughout college and Plaquenil until early 2000 when a doctor finally said why are you still on it and phased me off with a wait and see mentality...

Good luck on NxStage, it sure sounds like people feel its the best treatment.

Yeah, I was on all of that: cytoxan, plaquenil, imuran, prednisone, methotrexate. I got really unlucky during the flareup that took my kidneys and contracted meningitis while I was at the hospital. It made the treatment for the flareup more complicated, I guess. But it's all good.

EDIT: Corrected a few mistakes
« Last Edit: September 24, 2015, 10:00:14 AM by RenallyChallenged » Logged
March 2008 - Kidney Failure due to Lupus Nephritis
September 2009 - Kidney Transplant
July 2015 - Back on dialysis

Currently training for NxStage Home Hemo.
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