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Author Topic: Time for okarol to retire, leaving IHD admins to take over  (Read 20165 times)
SooMK
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Posts: 610


« Reply #25 on: April 23, 2014, 02:00:03 AM »

I don't have the history that so many people here do but I know what a lot of work it must be to keep IHD going. Thanks for your work on this great site and it's great to know you will be around. Wishing you only the best.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Zach
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"Still crazy after all these years."

« Reply #26 on: April 23, 2014, 06:07:48 AM »


Zach, I can never thank you enough for your wisdom and helping us to avert a hostile takeover, you're a true friend.


okarol, what can I say?
It has been my pleasure knowing and working with you over these few years.

Takeovers … mergers … they all want us!
So I guess I Hate Dialysis isn't a bad name after all.  :P

You know we'll keep in touch.

Love and luck,
--Zach
 8)

« Last Edit: April 23, 2014, 06:16:13 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Ninanna
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« Reply #27 on: April 23, 2014, 07:57:56 AM »

I don't have the history that so many people here do but I know what a lot of work it must be to keep IHD going. Thanks for your work on this great site and it's great to know you will be around. Wishing you only the best.

Couldn't have said it better. I hope Jenna is able to get a kidney soon!
Logged

Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Poppylicious
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« Reply #28 on: April 23, 2014, 01:03:07 PM »

*huggles* Karol. Thank you for helping to keep this site alive. Keep popping in often!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #29 on: April 26, 2014, 01:50:39 AM »

 :thx; :thx; :thx;
Thanks to all who have posted. It means a lot to me.  :cuddle;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Gerald Lively
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« Reply #30 on: April 26, 2014, 10:32:07 AM »

Well, . . . . . uh . . . . . heck . . . . . . you, uh, hmmmmmmm. . . . . . this is confirmation - I just got here and you leave, it's my bad breath, isn't it?  Or is it that time you caught me smooching with Moosemom and you said something that I forgot after you beat me up.  Wait a minute, that was another forum, the "I love Dialysis" group.

Find joy, happiness, and stop to smell the flowers.
Logged

Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #31 on: April 27, 2014, 01:33:33 AM »

Well, . . . . . uh . . . . . heck . . . . . . you, uh, hmmmmmmm. . . . . . this is confirmation - I just got here and you leave, it's my bad breath, isn't it?  Or is it that time you caught me smooching with Moosemom and you said something that I forgot after you beat me up.  Wait a minute, that was another forum, the "I love Dialysis" group.

Find joy, happiness, and stop to smell the flowers.

 :rofl; :rofl;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sugarlump
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10 years on and off dialysis

« Reply #32 on: April 27, 2014, 07:33:57 AM »

Bye Karol and thanks xThrough this site I have met and made friends with many people that have really helped me and we have just
had our first UK meet with 12 attendees.  :waving;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #33 on: April 27, 2014, 11:05:49 AM »

Bye Karol and thanks xThrough this site I have met and made friends with many people that have really helped me and we have just
had our first UK meet with 12 attendees.  :waving;

 :2thumbsup; :2thumbsup; :2thumbsup;
Thank you Sugarlump!
That's so fabulous about your meet-up!
Meeting IHD family has been a great experience for me!
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kristina
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« Reply #34 on: April 27, 2014, 11:07:35 AM »

Hello Karol,

                 I have tried to send you a message but it was not accepted because your letterbox is full....

Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #35 on: April 27, 2014, 11:09:12 AM »

Hello Karol,

                 I have tried to send you a message but it was not accepted because your letterbox is full....

Best wishes from Kristina.
Yes, as admin I had tons of storage, but now it's completely full.
Please feel free to email me at kidney4jenna@yahoo.com
 :flower;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
aharris2
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Volcan Pacaya, Guatemala

« Reply #36 on: July 05, 2014, 03:45:40 PM »

Okarol,

You are amazing. I never could understand how you did so much, where you found the energy, how you managed to fit 48 hrs into a 24 hr day. Allow me to be selfish and note that I always had a secret dread of this day (as well as an ongoing fear anytime we lose anyone.)

Best wishes on the continuing saga that is life. I hope to continue to see you here (and maybe in Las Vegas???). I do see you on facebook. Don't disappear!
 :bestwishes;
Logged

Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
kellyt
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« Reply #37 on: August 13, 2014, 01:21:31 PM »

Love you, girl.    :)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #38 on: August 13, 2014, 10:09:21 PM »

Well think of it this way, it's one step closer to taking a long deserved vacation and once Jenna has a transplant and in stable condition I hope you can take a nice long deserved vacation. ;D


Thank You for the many text during my multiple hospital stays.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #39 on: August 19, 2014, 01:48:17 PM »

 :waving; Hello, I am still posting news stories when I can. Very grateful that Kitkatz has done such a great job as admin!  :thx;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!

« Reply #40 on: August 19, 2014, 02:01:23 PM »

Yes, Kitkats has done a wonderful job all by herself..

                     :flower;
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okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #41 on: November 26, 2014, 02:56:53 PM »

Yes, Kitkats has done a wonderful job all by herself..

                     :flower;

Me too - for 6 years!!
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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