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Author Topic: Need some prayers for a boy  (Read 7424 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: December 03, 2007, 11:49:05 AM »

I have known Stash and his mom for the last couple of years. They have been wonderful cheerleaders for us as we faced Jenna's dialysis and transplant. Stash has been fighting this cancer and had good results, but the tumor is back. He is 12 1/2 years old. Please pray for Stash, visit his site: http://www.caringbridge.org/visit/stashphillips and send a card if you can. Thanks.
 
From his caringbridge site: STASH BRITTEN PHILLIPS WAS DIAGONOISED WITH MEDULLABLASTOMA (PNET) A HIGHLY AGGRESSIVE, GROWING BRAIN TUMOR, JUST 1O DAYS AFTER HIS 11TH BIRTHDAY ON MARCH 24, 2006. AFTER 9 MONTHS CANCER FREE---STASH RELASPED WITH GLIOBLASTOMA A VERY HIGHLY AGGRESIVE CANCER.... WE ARE CURRENTLY ON TEMOZOLOMIDE AN ORAL CHEMO.... THE DOCTORS ARE NEGATIVE ABOUT THE OUTCOME...BUT WE KNOW WITH THE GOOD LORD AND ALL OUR AWESOME PRAYER TEAM ....WE ARE GOING TO BEAT THIS BEAST ONCE AGAIN AND KICK THE "CAN" OUT OF CANCER.

PLEASE SEND ALL HAPPY MAIL TO:

STASH PHILLIPS

4461 WELLBORN WOODS DR

EIGHT MILE ALA

36613
« Last Edit: December 03, 2007, 11:54:30 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
glitter
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« Reply #1 on: December 03, 2007, 11:57:57 AM »

i have my browser set to accpet all cookies= ieven turned off my pop-up blocker- but I have so much trouble viewing the caring bridge sites...can anyone help?
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: December 03, 2007, 12:00:43 PM »

i have my browser set to accpet all cookies= ieven turned off my pop-up blocker- but I have so much trouble viewing the caring bridge sites...can anyone help?

I originally posted the wrong link, maybe that was the problem. Try clicking on it now - I hope it works. Thanks glitter.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #3 on: December 03, 2007, 12:10:02 PM »

Thanks Karol for allowing us to be apart of this young gentleman's life. 
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glitter
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« Reply #4 on: December 03, 2007, 12:13:05 PM »

it worked- i just have to open every page in a new tab ty.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
goofynina
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He is the love of my life......

« Reply #5 on: December 03, 2007, 02:22:41 PM »

Sending positive thoughts and lots of prayers to Stash and his family.  God Bless them all  :grouphug;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Amanda From OZ
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« Reply #6 on: December 16, 2007, 02:25:21 AM »

Sending good thoughts to stash.

Amanda
xoo
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: January 14, 2008, 11:44:24 AM »

Please take a minute and send Stash and his mom a note in their guestbook - he's not doing well and is struggling now. Here's a recent journal entry from his mom:

YES MY HEART STILL HURTS FOR MY LIL MAN, BUT IT SEEMS LIKE SINCE READING ALL THESE GUESTBOOK ENTRIES I FEEL STRONGER... YOU GUYS ARE THE BEST, STASH LOVES READING EACH AND EVERY ONE OF THE POSTS AND HE JUST SMILES THAT AWESOME SMILE.... THANK YOU ALL FOR MAKING SUPERMAN SMILE. I TELL YA I LOVE IT WHEN HE SMILES, IT MAKES ME SMILE.

Here's the site http://www.caringbridge.org/visit/stashphillips
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MyssAnne
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« Reply #8 on: January 14, 2008, 12:00:01 PM »

Thank you Karol.

It's bad enough that we are sick but when it's a kid, it's a heartbreaker.
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glitter
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« Reply #9 on: January 14, 2008, 12:05:51 PM »

i have been reading his journal every day- of all the links that have been posted this fellow has my heart....he is an amazing kid full of smiles, and his mother is just awesome as well....they do like to get  people from all over to sign their guestbook, they have a buddy map as well so they can see where people are from..

Karol I do appreciate you posting these ....\

when you start reading the journals of these kids who are going through so much- you will find links to other families too, I try to spend an hour a day posting good wishes just so they have alot of messages, so maybe for 1 second they don't feel so alone.  and alot of them do die, and then the moms and dads need a kind word too. It reminds me of Sara, Joe's wife, after he died she said how after a couple of weeks people stopped checking on her...they get on with their lives, and while that is necessary and true, they still need people to lift them up. I am not religious, and I do not think you HAVE to be- to be kind and let someone know you are at least- just listening. ( Be warned- it might break your heart a bit- but when you compare your minor pain to their  pain- you know its worth a minute of your time.)
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #10 on: January 18, 2008, 09:49:26 AM »

 :(  :'( Today on his caringbridge:
STASH BRITTEN PHILLIPS ---- SAFE IN THE ARMS OF JESUS... SUPERMAN GOT HIS MIRACLE....GOT HIS WELL DESERVED ANGEL WINGS THIS MORNING AT 4:50AM... HE DID NOT SUFFER JESUS TOOK HIM QUICK.... THANK YOU FOR THE MANY CARES AND PRAYERS YOU ALL SHOWED STASH...NOW MOM & DAD AND JORDAN NEED THE PRAYERS AS THEY COPE WITH LIFE WITHOUT HIM.... FUNERAL ARRANGMENTS ARE IN THE PROCESS...WILL UPDATE AS SOON AS WE KNOW.... SOAR SUPERMAN PLAYING HIS GUITAR AND RIDING HIS PINK GOCART IN HEAVENS PLAYGROUND....

REST IN PEACE

3-14-95---1-18-08
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MyssAnne
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« Reply #11 on: January 18, 2008, 09:54:51 AM »

Rest in peace Stash.  God bless you. 
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willieandwinnie
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« Reply #12 on: January 18, 2008, 10:09:59 AM »

Breaks my heart.   :'( :( Thoughts and prayers are with his family.
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Joe Paul
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« Reply #13 on: January 18, 2008, 10:14:16 AM »

Rest in peace  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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« Reply #14 on: January 18, 2008, 10:59:31 AM »

Heartbreaking story.  Prayers for his family.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
glitter
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« Reply #15 on: January 18, 2008, 11:57:04 AM »

This is sad, sad because his family will miss him so much- i am glad he didn't suffer for a long time- he was up and playing a week ago. His Mom will need a lot of support now....
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
goofynina
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Posts: 6429


He is the love of my life......

« Reply #16 on: January 18, 2008, 11:24:51 PM »

May his family find comfort and peace during this time of grief  :grouphug;  God Bless you little one  :angel;
« Last Edit: January 19, 2008, 02:48:25 PM by goofynina » Logged

....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Amanda From OZ
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« Reply #17 on: January 19, 2008, 09:07:53 AM »

I'm so sad to hear this... its just not fair.

Rest in peace.

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