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Author Topic: Hi my name is Ted, and I live in Toronto, Canada  (Read 2416 times)
Ted
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My partner and I in Bali, Indonesia

« on: September 23, 2014, 02:21:50 PM »

I have just joined a few days ago and have figured out that a small biography is posted  here to tell my story.  First off I am now 56 years male and hopefully climbing.  I personally feel I am, but have just come through a triple heart bypass and started Dialysis just before this.  I have HIV as well which has been for over 30 years now.   I had given up on trying to stay thin when I found out about HIV and gained a lot of weight and stopped my excessive compulsive exercising.  I finally was so tired of the weight I went to a weight clinic and lost 100lbs, got back to the gym but am still overweight and now again without exercise.  I started an HIV med about 4 years ago which is believed to be the source of my Kidney damage, but who knows, it just is what it is.

Well today and for the last 4 months I am in Home-Hemo training and am learning a lot.  I should be coming home to do it here soon, but I find it all very overwhelming at times and It is also really hard on my partner of 25 years.  The picture above is of myself an Orangutan and him, I am on the left.

I have a few other health issues, but this is more than enough for now, just wanted you to know who I am.  Ted
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Rerun
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Going through life tied to a chair!

« Reply #1 on: September 23, 2014, 02:58:30 PM »

Hi Ted, and welcome to IHD.  I'm glad you found us.  Lots to read here.  Just do it a little a time so you don't get overwhelmed.

See you on the board.

Rerun, Admin       :welcomesign; 
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SooMK
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« Reply #2 on: September 23, 2014, 04:45:45 PM »

Welcome Ted!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
PrimeTimer
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« Reply #3 on: September 23, 2014, 11:24:54 PM »

Welcome, Ted in Toronto! Terrific bio! Sounds like you've been thru a lot but willing to keep on keeping on, that's good! Home-hemo can be hard, time consuming, scary and stressful BUT...it is also very rewarding. All depends on how you look at it...from day to day. I am learning to take one good day at a time and make it last til the next. Read the threads and you will see. There is always someone here to answer questions or to look to for support.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Darthvadar
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« Reply #4 on: September 24, 2014, 03:18:11 AM »

Hello Ted.... May I say  :welcomesign; to IHD...

We're a friendly bunch, and I think you'll enjoy being here....

Visit often... We'll be here!....

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Simon Dog
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« Reply #5 on: September 24, 2014, 10:21:06 AM »

Welcome.  Which machine are you getting for home hemo?   How is the Canadian health care system treating you, eh?
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MaryJoe
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« Reply #6 on: September 25, 2014, 01:59:15 PM »

 :waving;  Hi Ted, welcome to IHD!
 
Thanks for telling us about yourself. I imagine training for home hemo would be pretty overwhelming, there's a lot of information to process in a short amount of time. Hang in there, many of our members do home hemo, and will be happy to help if you have questions.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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