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Author Topic: OMG, this fever....  (Read 34049 times)
jeannea
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« Reply #125 on: July 26, 2014, 05:53:27 PM »
Go for it. Throw fits. Dance naked in the streets. Whatever gets their attention.
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Ninanna
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« Reply #126 on: July 29, 2014, 03:44:33 AM »
Gah!  That has to be frustrating. I hope you get in to see this doctor soon :(
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
natnnnat
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« Reply #127 on: August 30, 2014, 09:06:03 PM »
I tried to find the parts of this conversation that summarized what is going on, and scrolled through many amusing pages, but I still missed the relevant details.  Lots of discussion of car parks and phone calls.
Something about wanting to go on a lifelong prescription of Bactrim.
Gregory is on a life long prescription of Bactrim.  He got it by getting pneumoccal pneumonia and losing his first transplant.  I don't recommend that course of action.  This is some kind of trial?
Anyway,
hey Cariad!!! You rock!
xn
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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