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Author Topic: Frank has an Adrenal mass  (Read 13728 times)
frankswife
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« Reply #25 on: March 17, 2014, 11:14:12 AM »
An update on Frank... NO MALIGNANCY! It turns out the mass was something called a Pseudocyst. (sp?) It's a really rare thing to get, apparently. Only 300 cases have been reported since 2003. Leave it to Frank!  :) Anyway, the surgeon has cleared him for transplant. His coordinator was ready to list him when this pseudo thingy popped up, so I imagine it wont be too long. Thanks to all for your prayers and good wishes.  :yahoo; :yahoo; :yahoo;
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"If we all abandon our posts, who then will stand?" St. Augustine
Angiepkd
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« Reply #26 on: March 17, 2014, 12:58:54 PM »
This is wonderful news!  Congratulations!  So happy for you both. Now on to getting that new kidney!  :2thumbsup;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
MooseMom
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« Reply #27 on: March 17, 2014, 04:14:06 PM »
OMG, you must both be so relieved!  This is the happiest thing I've read all day.   :yahoo;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #28 on: March 17, 2014, 11:57:59 PM »
 :clap; :clap; :clap; That's amazing and awesome news!  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bambino_Bear
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« Reply #29 on: March 18, 2014, 02:46:30 AM »
 :cheer: :cheer: :cheer:
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
cassandra
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When all else fails run in circles, shout loudly
« Reply #30 on: March 18, 2014, 03:10:10 PM »
Fantastic news!!!!

    :cheer:      :cheer:      :yahoo;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
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« Reply #31 on: March 19, 2014, 12:57:28 AM »
So happy to hear about this great news.    :cheer:   :cheer:   :cheer:   :cheer:
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One day at a time, thats all I can do.
LisaBart
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« Reply #32 on: July 31, 2014, 05:52:35 PM »
My husband also has an adrenal mass, but we have been told that it's "quite common" for benign adrenal masses...and they have not touched it...
With constant left side pain we wanted this checked but this is what showed...they virtually said don't worry about it...
Maybe it will be a different thing if he ever gets to transplant stage ?
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MaryJoe
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« Reply #33 on: August 07, 2014, 01:43:58 PM »
I'm so happy Frank is good to go for his transplant!  I needed good news today, and this news is fantastic!
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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