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foleydunk
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« on: June 06, 2014, 06:34:54 PM »
My name is Lauren and I am from NY.  My husband was just recently diagnosed with end stage renal failure.  Previously he had been living with iga nephropathy but it became worse quickly.  He just started PD today (had his cath put in 2 days ago) and feels like a new man!  He hasn't felt this good since before our son was born in 2010.  I'm looking forward to browsing all of the posts on this website; this looks like a wonderful resource, especially for the spouses and caregivers involved.
« Last Edit: June 06, 2014, 06:39:51 PM by foleydunk » Logged
My husband has ESRD and is on PD.
Eagerly awaiting a transplant!
Ninanna
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« Reply #1 on: June 06, 2014, 09:45:05 PM »
Hi Lauren and welcome to the site. I too have IgA and there is lots of good information and support here. I look forward to getting to know you better!
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Bambino_Bear
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« Reply #2 on: June 06, 2014, 10:38:34 PM »
 :welcomesign; Lauren!
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
PrimeTimer
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« Reply #3 on: June 07, 2014, 12:53:42 AM »
Welcome, foleydunk! This is a good place to be when you need answers, honesty and support. I am a care-giving spouse, my husband uses the NxStage System One Cycler for home hemo. It's a lot of work and we are having to adjust to a new way of life but it is doable and we believe works out better for us than him going to a center 3 times a week. He wants to continue working fulltime and so far, thanks to short daily hemodialysis 5 times a week, he feels up to it.

Anyway, there are a lot of subjects to browse or if you are ever in a hurry, just ask your question, state your need or vent, whichever comes first because believe me, you will do all three at some point...and that's what this site is for!  :thumbup;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
SooMK
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« Reply #4 on: June 07, 2014, 06:32:00 AM »
Welcome Lauren!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Poppylicious
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« Reply #5 on: June 08, 2014, 07:17:30 AM »
Hello Lauren, and  :welcomesign; to ihd.com! I'm a wifey too, although my Blokey has now had a transplant.  This site has been invaluable for me, in both my darkest, most miserable moments, and my best.

 ;D

Poppylicious, Moderator
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #6 on: June 12, 2014, 07:16:42 PM »
Welcome! I too am a caregiver, and the folks here are great at offering support :)
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
Darthvadar
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« Reply #7 on: June 13, 2014, 12:07:54 PM »
Hello...

Nice to see that you've found us....

You're very  :welcomesign; to IHD....

I can see you're a chatty one... We like those!.....

See you soon, and often!...

Darth, Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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