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I Hate Dialysis Message Board
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Introduce Yourself
Hi!
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Topic: Hi! (Read 3136 times)
skyedogrocks
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Rob showing off his pot of gold!
Hi!
«
on:
May 29, 2007, 09:05:22 AM »
Hi,
My name is Larraine and my husband Rob has been on dialysis for just over a year. I am 37, he is 39. He ended up with kidney failure due to being a diabetic for over 20 years.
Since you will most likely never see my husband posting on here (typing isn't a strong point of his!), I would like to do the introductions. I have to say, dialysis does suck. Rob still works his full time job as an electrician and was going to dialysis 3 nights a week. He just started the Nx Stage Home Dialysis. The pros is that he feels so much better, no cramping and has been taken off 2 blood pressure pills. The cons, I feel like our whole world revolves around this machine. In reality, I know this is what is keeping him alive, but right now it seems like we live, eat and breathe the dialysis machine. We have been told this will get better.
Enough about that. We have been married for almost 5 years, it's the 2nd marriage for each of us. We feel like it was destiny though, that brought us together. His mom and I share the same first name (although we spell it differently) and birthday. Weird huh?
He is the best thing that has ever happened to me and we are just so deeply in love. We can't have biological children, but we are hoping to adopt this year. We plan to adopt through the state. We are so eager for our family to expand. We do though, have 2 dogs...Skye a 10 yo lab and Luke a 2 yo german shorthaired pointer.
Rob doesn't share the same blood type as his parents and sister. However, we are the same blood type and even a 3 out of 6 tissue match. Another reason we feel we are made for each other. Unfortunately, I have to lose weight in order to donate. So that is happening, slowly but surely.
It's nice to have others to talk about as they go through this. Sometimes we feel so alone, because others just don't know what to say. My husband is just amazing though, he has the best outlook on life and is so positive. We have never let this disease affect our life. Don't get me wrong, it has been tough. He had to deal with the mood swings, the minor depression, the menu restrictions, etc. But he and I prevailed.
I look forward to getting to know all of you. This is a great site!
Larraine
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.
11/17/09 After 4 years on dialysis, Rob received a kidney from our George. Kidney is working great! YEAH!!!!
KICKSTART
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In da House.
Re: Hi!
«
Reply #1 on:
May 29, 2007, 09:09:21 AM »
you will find this a useful place to ask any questions and get loads of support!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Joe Paul
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Re: Hi!
«
Reply #2 on:
May 29, 2007, 09:32:21 AM »
Welcome skyedogrocks , good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Laurie
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May 13, 2008
Re: Hi!
«
Reply #3 on:
May 29, 2007, 09:48:35 AM »
to IHD
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Sluff
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Re: Hi!
«
Reply #4 on:
May 29, 2007, 10:21:43 AM »
Thank you for introducing yourself,skyedogsrocks, it is the best way for us to get to know you better. Whatever your reason for joining our family here at IHD, I hope you find everything you need, but most importantly I want you to feel comfortable to ask questions and come back and post often. We have a caregiver section also for you to enjoy.
Here is a link to help you out.
Site rules:
http://ihatedialysis.com/forum/index.php?topic=540.0
Sluff, Adm
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okarol
Administrator
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Photo is Jenna - after Disneyland - 1988
Re: Hi!
«
Reply #5 on:
May 29, 2007, 10:28:20 AM »
Hi Larraine,
Welcome to you and hubby!
You will find good info in the transplant section as well.
http://ihatedialysis.com/forum/index.php?board=27.0
Good luck to you both,
Karol
okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
Re: Hi!
«
Reply #6 on:
May 29, 2007, 11:04:40 AM »
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www.caringbridge.org/visit/ottomachado
goofynina
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He is the love of my life......
Re: Hi!
«
Reply #7 on:
May 29, 2007, 11:34:37 AM »
Hi Larraine, Welcome to ihatedialysis.com. It's great having you here, so much info to read and hopefully you will have some to share as well.
Who knows, maybe, just maybe your hubby will come and read some too, i sure hope so
Looking forward to hearing more from you soon
Goofynina/Admin.
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....and i think to myself, what a wonderful world....
www.kidneyoogle.com
skyedogrocks
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Rob showing off his pot of gold!
Re: Hi!
«
Reply #8 on:
May 29, 2007, 01:01:24 PM »
Thanks for the warm welcome! I look forward to talking to you all!
Logged
Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.
11/17/09 After 4 years on dialysis, Rob received a kidney from our George. Kidney is working great! YEAH!!!!
keefer51
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Re: Hi!
«
Reply #9 on:
May 29, 2007, 02:04:53 PM »
Hello Larraine and Rob. Welcome to this site. My exwife and i couldn't have children either well it was really me. So they decided to operate. My kidney failed and that put me on dialysis for a year. I had a transplant from my brother. It was a perfect match. The transplant lasted over ten years. I am now on dialysis for three years. The first time i worked full time. This time i can hardly walk. I am tired all the time. I am 51 now and by my self. I can't really give up because i don't know what tommorrow brings.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
kitkatz
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Re: Hi!
«
Reply #10 on:
May 29, 2007, 07:22:47 PM »
Welcome to the IHD.com site! You will find a lot of helpful information here, as well as a lot of information of all types of dialysis. Our administrators are Goofynina and Sluff. The moderators are Bajanne2000, Kitkatz (ME), and OKarol. We are here to assist you in any way if you need help on the site.
Let me give you a brief overview of the site.
There are lots of interesting discussions in the off topic area:
http://ihatedialysis.com/forum/index.php?board=5.0
.
There is even a story being written by our members in this area:
http://ihatedialysis.com/forum/index.php?board=17.0
Home dialysis discussions are in this topic:
http://ihatedialysis.com/forum/index.php?board=25.0
The area that generates a lot of discussion about dialysis is the general discussion topics:
http://ihatedialysis.com/forum/index.php?board=2.0
This area of the forum is where the meat and potatoes of the dialysis world are discussed by the members.
Feel free to post anything you want to discuss or if you have a question.
There is also a search box at the top of the boards to help you in finding topics of interest or answers to your questions. You can refine your search, too.
I hope this short tour has helped you become better acquainted with IHD.com.
There is also a topic on adopting children in the forum. We have a few members who are looking into it, also.
kitkatz,moderator
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Hi!
«
Reply #11 on:
May 30, 2007, 05:54:01 AM »
Welcome to our community! This is just the place to be for anyone dealing with this renal challenge. This site was a god-send to me as I prepared for dialysis and it continues to be a very important part of my life. We have become a real family here, with all the advantages of family - love, support, togetherness, fun. so take advantage of everything.
Bajanne, Moderator
«
Last Edit: May 30, 2007, 06:58:30 AM by bajanne2000
»
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Hawkeye
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Re: Hi!
«
Reply #12 on:
May 30, 2007, 06:51:18 AM »
Hello and
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It's not easy being green.
kelliOR
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Re: Hi!
«
Reply #13 on:
May 30, 2007, 08:59:58 PM »
Happy to have you here! How wonderful that you are a half match for your honey
!
Looking forward to hearing more from you,
Kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........
Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
Wattle
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Re: Hi!
«
Reply #14 on:
May 31, 2007, 04:37:57 AM »
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Earlinda
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Re: Hi!
«
Reply #15 on:
June 07, 2007, 08:24:16 PM »
to IHD! I would like to hear more about your home dialysis adventures.
I am going to be starting training for NxStage in either September or October.
Earlinda
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