|
Shaks24
|
 |
« Reply #50 on: October 21, 2013, 09:46:28 PM » |
|
Hope it goes well tomorrow Nikki. Maybe the swelling was a one off event that will not happen again. Prayers and best wishes for tomorrow.
|
|
|
|
|
Logged
|
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
|
|
|
|
Bambino_Bear
|
|
« Reply #51 on: October 22, 2013, 07:48:08 PM » |
|
I want to start by saying that our docs and nurses at our clinic are AMAZING. They are so nice and so caring. We met the social worker and the nutritionist today. We also had our first appointment with the new neph whom I love. He was upset the surgeon didn't do more for Justin yesterday. We did a fill to 2200 and the swelling happened again. Our Neph whipped out his cell phone and called the surgeon on his cell phone to tell him what the deal was and how to fix it. Surgery is now scheduled for Monday. Since my husband still has some function we won't need a chest cath or anything (I was worried about that!) Also we got our labs back from Thursday and everything was in range. Kinda crazy considering we are new to dialysis. I am feeling much better now that we have a plan. If I know what is going on I can deal. It is the not knowing that kills me. Thanks for the kind words and support!  |
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
Vitality
Newbie
 Offline
Gender: 
Posts: 12
|
|
« Reply #52 on: October 22, 2013, 10:16:53 PM » |
|
Other than the reappearance of swelling, great news, Nikki! I'm glad to hear that you and your husband are being well taken care of. Yes!... medical staff can be amazingly kind and caring. I will relate more about that when I present my "intro" soon. I wish you and your husband continued success and increasing feelings of comfort and confidence as you progress on your path to wellness.  |
|
|
|
|
Logged
|
|
|
|
|
Bambino_Bear
|
|
« Reply #53 on: October 23, 2013, 08:58:30 AM » |
|
Thanks so much V! I look forward to your intro.
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
Vitality
Newbie
Offline
Gender:
Posts: 12
|
|
« Reply #54 on: October 23, 2013, 12:52:01 PM » |
|
Hi, Nikki. I just posted my intro. Hoping all is well!
|
|
|
|
|
Logged
|
|
|
|
|
MaryJoe
|
|
« Reply #55 on: October 26, 2013, 04:34:01 PM » |
|
 Finally! A doctor with some common sense! I'm glad the problem will be remedied, but sorry your husband needs surgery to fix the problem. I'm with you on having a plan. It is always easier for me to cope when I know the pertinent information and feel like everyone is on the same page.
|
|
|
|
|
Logged
|
Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
|
|
|
|
Bambino_Bear
|
|
« Reply #56 on: October 27, 2013, 01:47:54 PM » |
|
Thanks Mary Joe!
Surgery tomorrow. Getting a little nervous. I know everything will be ok though.
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Shaks24
|
|
« Reply #57 on: October 28, 2013, 02:08:48 AM » |
|
Good luck Nikki and Justin. May healing and recovery be swift. Thoughts and prayers are with you.
|
|
|
|
|
Logged
|
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
|
|
|
|
Bambino_Bear
|
|
« Reply #58 on: October 28, 2013, 02:34:56 PM » |
|
Thanks guys. Surgery went fine. Justin is in some pain but sleeping due to the meds. We can go back to training as soon as he feels ready. Hopefully it will be smooth sailing from here on!
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Shaks24
|
|
« Reply #59 on: October 30, 2013, 04:56:11 PM » |
|
Hope so Nikki. Keep us posted.
|
|
|
|
|
Logged
|
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
|
|
|
|
Bambino_Bear
|
|
« Reply #60 on: November 05, 2013, 08:16:07 AM » |
|
Training went great yesterday. Justin is doing his own exchanges. He pulled off more than he put in for the first time yesterday. I was unable to go with to training today. I slipped on a wet floor (lots of rain here) and hurt my knee. I have it elevated with an ice pack and have to stay in bed. Other than that things are going good.
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Shaks24
|
|
« Reply #61 on: November 05, 2013, 01:28:02 PM » |
|
That's great news on Justin. Sorry about your knee. Hope it heals quickly and you can be up and about soon.
|
|
|
|
|
Logged
|
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
|
|
|
|
Bambino_Bear
|
|
« Reply #62 on: November 05, 2013, 02:33:08 PM » |
|
Thanks!
How goes it with the cycler?
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Shaks24
|
|
« Reply #63 on: November 05, 2013, 04:06:52 PM » |
|
Not good. Last 2 nights were disasters with alarms. Today we changed the program. Hopefully that will work tonight. If not we may try a different style of machine or go to manuals. I think the other machine is called the Newton. Older style that uses gravity and a pump for the disposal drain line. Fingers are crossed as I got a months supplies for the Liberty cycler yesterday. It was a big pallet of stuff.
|
|
|
|
|
Logged
|
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
|
|
|
|
Bambino_Bear
|
|
« Reply #64 on: November 07, 2013, 08:47:13 AM » |
|
Sorry the cycler isn't going very well. Training is pretty much over and we go home tomorrow with our nurse. Justin and I feel confident doing the exchanges. We will do the manuals for 30 days and then train on the cycler. I asked our nurse about all the alarms you were having and she said most people have some the first few days and it gets better. I hope it does get better for you! |
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Shaks24
|
|
« Reply #65 on: November 07, 2013, 10:52:36 AM » |
|
They adjusted the TIDAL program on the cycler and the last 2 nights have been good. Hopefully that continues. Its nice to be empty during the day and not have to do 3 manuals plus one at night.
|
|
|
|
|
Logged
|
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
|
|
|
|
Bambino_Bear
|
|
« Reply #66 on: November 07, 2013, 06:10:34 PM » |
|
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Bambino_Bear
|
|
« Reply #67 on: November 09, 2013, 10:55:54 AM » |
|
Training is done and we have done 3 exchanges on our own at home. Everything is going great. Thanks again to everyone (Most of all Shaks) for your support and words of wisdom. |
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Shaks24
|
|
« Reply #68 on: November 18, 2013, 06:11:34 AM » |
|
Just checking on you and Justin Nikki. Are things going well? Have you started training on the cycler yet? Hope you both are doing well!
|
|
|
|
|
Logged
|
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
|
|
|
|
Bambino_Bear
|
|
« Reply #69 on: November 18, 2013, 01:00:13 PM » |
|
Things are going good. We have our PET test 12/11 and then will start cycler training after that. We have our monthly appointment with the Neph tomorrow.
How goes the cycler?
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Shaks24
|
|
« Reply #70 on: November 18, 2013, 01:18:18 PM » |
|
Going real well now. That last adjustment made all the difference. It is nice to be empty during the days and not have to do the manuals. I reorded supplies for the cycler today.
|
|
|
|
|
Logged
|
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
|
|
|
|
Bambino_Bear
|
|
« Reply #71 on: November 19, 2013, 10:24:30 AM » |
|
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
Bambino_Bear
|
|
« Reply #72 on: November 19, 2013, 02:32:26 PM » |
|
|
|
|
|
|
Logged
|
I am a caregiver to my wonderful husband, He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go.
He had a transplant in November 2019.
|
|
|
|
I Hate Dialysis Message Board
Author
