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Author Topic: Thank you, inferior genetics!  (Read 3109 times)
NolaReb
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« on: November 23, 2013, 10:55:53 PM »

After 43 years, I'm finally having to deal with this polycystic kidney disorder instead of glibly forgetting all about its existence.  I never completely forgot, but still, I spent the first half of my life paying little attention to my PKD.  This year, however, my BUN level is 66 and my creatinine is 3.68, which led me to having a catheter surgically inserted two weeks ago for peritoneal dialysis.  I start training on Monday.  As I will apparently be made to stay still for hours at a time during training, I bought several books, including Infinite Jest, for my amusement.  I also have Let's Explore Diabetes with Owls to break things up if need be.  My main concern about dialysis is that I won't feel better.  I've been entirely too low energy for a long time now, and I'm apprehensive that dialysis won't change anything.  I expect it to keep me alive, however, which is the main thing. 

 :sir ken;  I have no reason to post that smiley.  There is such a cornucopia of smiley faces staring at me while I write this that I had to at least choose one and insert it whatever may come.

I hope dialysis becomes for me no more onerous than insulin shots are for diabetics.  I'm choosing to do the all night machine driven version of peritoneal dialysis rather than the four times a day fill and drain procedure because I'm expecting to sleep for the majority of the time, which doesn't seem to be much of a sacrifice at all.  I take care of my mother.  She's 84 and while she doesn't have dementia, her memory has deteriorated to the point she is unable to take care of herself without assistance.  I'm relieved that I'll be able to be with Mom as long as she needs me. 

I appreciate having a group like this one as I embark on the next noteworthy event in my life. 
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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: November 24, 2013, 03:17:08 AM »

Welcome to the site Nolareb

   :welcomesign;

And you will feel quite a bit better with APD

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Poppylicious
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WWW
« Reply #2 on: November 24, 2013, 04:45:13 AM »

Hello NolaReb, and  :welcomesign;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Shaks24
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« Reply #3 on: November 24, 2013, 05:34:38 AM »

Welcome NolaReb   :welcomesign;.  I started PD this last September. I was feeling horrible at that time. Within a few weeks of starting PD I felt a whole lot better. As your training progresses, hopefully you will do well on the cycler. That way your days will be yours. Its amazing how much better you feel when the crap is removed from your blood stream.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
CebuShan
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« Reply #4 on: November 24, 2013, 09:06:36 AM »

   :welcomesign;  NolaReb!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
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