Hi, I'm an ESRD patient secondary to LUPUS NEPHRITIS

[ilovesoda]

Hi everyone,

I was diagnosed in May 2007 of Lupus Nephritis Type IV. My kidneys failed on October 2007 hence started dialysis that same month. My first symptom was swelling of the feet. Had failed kidney transplant on September 2008 due to hospital acquired pneumonia. My mom was my donor (almost perfect match). Had brain stroke in October 2008, a few days after leaving the hospital after failed transplant. Went blind for three days due to stroke. Had heart attack on March 2011. Since having attack, went from twice to three times dialysis since can no longer tolerate large amount of fluid removal during dialysis. Was diagnosed with hyperparathyroidism and been bedridden since December 2011 (unable to walk because of bone disease). Last June 2013 my heart got weaker and cannot tolerate the usual fluid removal of 3 liters. Now I'm on 4 times a week dialysis and can only tolerate at most 1.5 liters of fluid removal during dialysis, but always with chest pains and feeling so tired because of my heart problem...

[Rerun]

Hi ilovesoda,  Sounds pretty tough.  You must have some joy in your life.  Something to keep you going everyday?  Your fluid between dialysis is pretty high.  Salt will make you thirsty.  oh... I see your name now.... LOL

Welcome to IHD.     I'm so glad you found us.

Rerun, Moderator

[ilovesoda]

Hi Rerun, thanks for the warm welcome. 

Actually 1.5 liters is my UF goal (1 liter gain plus return of 300mL saline plus 200mL drinks during dialysis). I'm only gaining about 1 to 1.1 liters in between dialysis (my dialysis sessions are Mon, Wed, Fri & Sat). So that's about 500 mL per day of fluid only. And that's no way to live, really... 

The reason I joined is basically because of that. I'd like to know how people with such a limited fluid intake deal with this kind of ordeal. It's really driving me crazy...  I'm just so thirsty all the time

[Shaks24]

Hi ilovesoda. I hope you find some answers here that help you out. I am glad you found us and decided to join. 

[ilovesoda]

Thanks Shaks24