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joanna2007
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« on: March 05, 2007, 08:37:52 PM »
Hi all,
   I'm a 58 yr old widow who was first diagnosed with CKD back in 1982.  At the time it wasn't any big deal just went to the neph every year and slowly my GFR has dropped to 13%, BUN 73.  Remarkably I still feel good, no outward signs except I get tired and need a nap every now and then.  I'm not on dialysis (yet) and I am on the transplant list as of last month.

   I was married for 34 years to a wonderful man, he died in 2001 of a heart attack at age 52. I have two grown sons, and 3 grandkids.  My 17 year old grand-daughter, Katie, lives with me ...... we have 2 cats, a dog and a bunny to keep us company.   

   I live in Northern Indiana on an acre and I'm able to take care of all of the lawncare and gardening.  (The weeds overtake the flower beds, but I do manage to keep the lawn mowed)

   I'm hoping that I can hold off on dialysis and go directly to a transplant.   Really my hope is I can just maintain the GFR I have and feel as good as I do for several more years.  I don't know if I'm just in denial or if that's a real possibility.       Joanna
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This is the day that the Lord has made, let us rejoice and be glad in it.
                            Joanna
Sluff
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« Reply #1 on: March 05, 2007, 08:39:40 PM »
Welcome to IHD Joanna,

I don't think you are in denial I think you are just hopeful. Nothing wrong with that!!

I hope you learn a lot from IHD because there is a wealth of information now at your fingertips.

Great picture too!!

It is great to have you become part of our family here.

Sluff / Administrator
« Last Edit: March 05, 2007, 08:44:14 PM by sluff » Logged
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: March 05, 2007, 08:44:59 PM »
Welcome to our community, and to our IHD family.  Thanks for joining us.  There is lots here for you to read - lots that will help to prepare you for whatever you might face - transplant, or dialysis.  I hope you get through with your transplant and not have to go through dialysis, but if you do, we will be here for you.
Keep us posted on your progress, using General Discussion (or Transplant Stories!)
 :grouphug;

Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
mcjane
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« Reply #3 on: March 05, 2007, 08:47:12 PM »
Hi Joanna, glad to meet you & welcome you to IHD. How nice of you to post your picture, what a pretty smile you have.

Jane
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kitkatz
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« Reply #4 on: March 05, 2007, 08:49:35 PM »
Welocme.  You will find all kinds of stories and people here.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
joanna2007
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« Reply #5 on: March 05, 2007, 08:54:47 PM »
Thanks for all the welcomes.  I think I'm going to find this website very helpful.
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This is the day that the Lord has made, let us rejoice and be glad in it.
                            Joanna
Zach
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"Still crazy after all these years."
« Reply #6 on: March 05, 2007, 09:13:27 PM »
Really good to have you here!    ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #7 on: March 05, 2007, 09:59:56 PM »
Welcome Joanna, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #8 on: March 06, 2007, 01:20:40 AM »
Hey Joanna,

 :welcomesign;

Hope you enjoy the site. This place is not only a site it is also a support group. We are here for each other in many ways, a question answered, a shoulder to cry on, or even just a laugh or a chat.

Anyway hope to see you around here.

Tamara xxx ooo  :beer1;  :cuddle;  :beer1;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Wattle
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« Reply #9 on: March 06, 2007, 01:31:06 AM »




 :welcomesign;  Joanna.   I am glad you found us.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kimcanada
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« Reply #10 on: March 06, 2007, 03:51:23 AM »
 :welcomesign; Joanna

Kim
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thegrammalady
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« Reply #11 on: March 06, 2007, 07:37:40 AM »
:welcomesign; nothing is impossible, everyone is different we all have a different point of view and reaction to many of the same things
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
MyssAnne
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« Reply #12 on: March 06, 2007, 11:06:54 AM »
Another Hoosier!!!  :clap; :clap; Yay!!! I just joined yesterday, my, how time flies! I live in Muncie, so that's
Central Indiana!  :welcomesign; :welcomesign;
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Jill D.
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« Reply #13 on: March 06, 2007, 06:46:05 PM »
 :welcomesign; Joanna!
That's awesome that your disease has progressed so slowly. I hope that you can get a transplant before dialysis! My story is similar to yours...if you don't mind me asking, what is the cause of your CKD?
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
joanna2007
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« Reply #14 on: March 06, 2007, 08:07:58 PM »
I honestly don't know what the cause of my CKD.  I have a few ideas, but the docs have never confirmed my suspiscions.  When I was diagnosed in 1982 we had just came home from a vacation to the Grand Canyon and we had hiked to Plateau Point, it was a grueling all day hike.  After that I developed severe pitting edema,  many tests and doctor visits and after a bioposy I was finally diagnosed with membraneous glomerilu nephritos  (sorry for the spelling    :'()   I was told to stay away from Advil and other than that not much concern until my GFR dropped to under 20.  My last blood test was GFR of 13....ugh.  When did you have to go on dialysis...what was your numbers?  I see your sister donated a kidney, how is that going for the two of you? 

                        Joanna
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This is the day that the Lord has made, let us rejoice and be glad in it.
                            Joanna
anja
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« Reply #15 on: March 06, 2007, 08:27:46 PM »
 :welcomesign; Joanna2007 to the community!  Really great picture.   :2thumbsup;
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kelliOR
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« Reply #16 on: March 07, 2007, 03:24:13 PM »
Hi Joanna,

Nice to meet you!       kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
Jill D.
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« Reply #17 on: March 08, 2007, 04:53:05 PM »
Quote from: joanna2007 on March 06, 2007, 08:07:58 PM
I honestly don't know what the cause of my CKD.  I have a few ideas, but the docs have never confirmed my suspiscions.  When I was diagnosed in 1982 we had just came home from a vacation to the Grand Canyon and we had hiked to Plateau Point, it was a grueling all day hike.  After that I developed severe pitting edema,  many tests and doctor visits and after a bioposy I was finally diagnosed with membraneous glomerilu nephritos  (sorry for the spelling    :'()   I was told to stay away from Advil and other than that not much concern until my GFR dropped to under 20.  My last blood test was GFR of 13....ugh.  When did you have to go on dialysis...what was your numbers?  I see your sister donated a kidney, how is that going for the two of you? 

                        Joanna
Hi Joanna - like you, my disease (FSGS) was slow progressing. I had a transplant evaluation when my GFR was at 15, with the hope to have a transplant before dialysis, but started dialysis when my GFR was around 8. You can read the details in my intro at http://ihatedialysis.com/forum/index.php?topic=1313.0

My sister and I are both doing great..she just went for her 3 month follow up (and is doing great!) and I go for my follow up at the end of this month.

I wish you the best!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
paris
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« Reply #18 on: March 08, 2007, 06:36:18 PM »
Welcome - it isn't denial - it is hope, we all need hope or we couldn't get cope with this disease.   :welcomesign;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
billoggblog
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You Dialyse to Live....You Don't live to Dialyse!
« Reply #19 on: March 09, 2007, 12:48:43 PM »
Hi Joanna,  :welcomesign; Keep Positive :2thumbsup; :2thumbsup; :clap;
Bill.
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Yesterday is History..........Tomorrow is Mystery..........
Today is a Gift...That's why they call it Present.
jedimaster
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Stainboy is....alive!!!
« Reply #20 on: March 10, 2007, 09:58:16 AM »
 :welcomesign;
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