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| | |-+  How much fluid can you tolerate being taken off?
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Author Topic: How much fluid can you tolerate being taken off?  (Read 16599 times)
dublin
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« Reply #25 on: July 12, 2013, 11:23:06 AM »

Surprisingly enough, I made it through to the end, although my bp was pretty low when I came off. The nurses have been on my back about my fluids. I'm trying to stick to drinking 1.25 litres a day, but it is hard, especially when I used to guzzle over 5 litres a day, and considerably more than that on Fridays. I'm a solid lump of a lad, weighing in at 110kgs, at 5'11'' and visiting the gym two to three times a week. I am transplant listed, although my surgeon did say that I'd have a better chance with a new kidney if I got down to 100... which I am working on.
its very very hard to stick to the fluid levels i am allowed 1 liter only a day i can stick to it some of the time i have to try extra hard so they dont give an extra day in the chair i am now down to 3 days a week instead of 5 days a week i am liveing on ice cubes only
 :2thumbsup; :bandance;
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ianch
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« Reply #26 on: August 10, 2013, 02:05:22 AM »

My DiaMon software keeps me honest.  I target for 2.0 over 10 hours, but can go to 2.5 with a standard UF rate before the brain gets affected.  I cramp very easily and would require additional sodium to go much higher (but don't like tampering with machine config).

On occasion if I stuff up and require 3.0 then i profile it for 1.0 for the first hour, 500ml for the 2nd and 1.5 over the last 8 hours.   

WARNING: Profiling can be extremely dangerous especially if the machine does not provide a function for managing it.  It can cause significant dehydration and crash the blood pressure if not managed properly. Should only to be used with approval. 

Incidentally, DiaMon does not support profiling.
 

   
« Last Edit: August 10, 2013, 02:10:35 AM by ianch » Logged

Ian Chitty
ESRD suffer, IT specialist, and business owner
(<2yrs) 1Y in-center, 9 months HomeD, 4 weeks tourism dialysis (Philippines/Singapore)

https://kiwimedtec.com
The aim of KiwiMedTec is to develop online solutions and partnered networks for dialysis patients, to make coping with kidney disease a little bit easier.
hillary
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« Reply #27 on: September 21, 2013, 08:40:35 AM »

If they try to take off more than 1.5 liters, I cramp up like a mo fo.  I hate the fact that they can't take more but the cramping is absolutely crippling.
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NDXUFan
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« Reply #28 on: September 22, 2013, 08:27:17 PM »

No more than 3 kilos. No matter the amount of time or the amount of water im holding. For example Im probably 10 kilos over right now, but that means I need to pick up extra treatments because I cramp inside of my knee if I ever go over 3. Yes, INSIDE, my knee. It's horrible. They end up having to put liters back into me.

If they seriously hurt you, have them charged with assault.
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