I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 20, 2024, 09:42:12 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Disrespectful Staff?
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Disrespectful Staff?  (Read 2430 times)
iKAZ3D
Full Member
***
Offline Offline

Gender: Male
Posts: 221


06/08/2013

« on: September 07, 2013, 09:53:19 PM »

Hello all! I haven't posted in a while because I haven't needed too due to a great transplant and an even better time adjusting to school. I'm currently enrolled in IB Biology, Human Anatomy & Physiology. My career destination is going to be a Pediatric Nurse. I don't know what college I'll go to yet. I want to go somewhere near my friend that's going out of state because she is literally my best friend on the planet and is like a second sister to me. Her name is Coral, and today she helped me with a garage sale...that failed miserably...but that's not what this post is about.

   Now to start off, let me give you a little background. On June 8th, I got off Dialysis at 97.3kg. The next day, my transplant made me go to 108kg that I slowly lost. Now, I'm starting to gain weight despite not being on steroids. I'm up to 112kg (but I have noticed it fluctuate around 110-112). So this wasn't satisfying to the hospital.

My clinic basically went like this:

Social Worker

SW: "Oh it seems you've gained weight. What went wrong?"  (Not your job, but fine, I'll bite)
Me: "I don't know, I haven't changed my eating habits much which never made me gain this excessively. I am planning to join a gym though, so I'm not too worried."
SW: "Alright, well we need to work on your weight. I'll let the dietitian know."

Dietitian

D: "Wow, you've gained a decent amount since transplant. What's going on?"
Me: "I don't know what's causing this sudden weight gain, but I'm going to join the gym with my friend and make a routine out of it."
D: "Ok, let's spend 15 minutes talking about ways to lose weight."

Doctor

Doc: "You've gained a lot of weight."
Me: "I know, I'm going to join a gym."
Doc: "You know the consequences of higher weight? We're worried about that."
Me: "I know, I'm well aware...that's why I'm joining a gym."
Doc: "Exercise more."
Me (not aloud): What the f**k?! I just friggin said...!


Get the idea here? If not, you'll notice I have a desire to lose weight and join a gym, but when I tried to alert them of that, it went in one ear, and straight out the other.

If you're not going to respect what I have to say, than why should I respect what YOU have to say? Regardless of if you've my new transplant team and you have jurisdictions, you have a physical quote that should be embedded in you. The patient is ALWAYS right!


On A Separate Note

Do you guys want me to post my story updates? I plan to start writing here in the next few weeks. I'm debating getting a Windows 8 Laptop/Tablet thing so I have word on the go to type (Much lighter than my laptop, and more versatile than my iPad).
I think that's respectable, right? A computer for writing and design? It'd be like a Widnows Surface RT. Like $320 for that thing :P
Logged

August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!

« Reply #1 on: September 08, 2013, 06:15:05 AM »

Yes, keep writing, but go to Transplant Stories.  That is where I would put it now that you're dua.... transplanted.  (LOL)

You are correct on the transplant team.  They need to give you a chance plus listen to you.

Looking forward to reading your stories.   :cheer:
Logged

okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #2 on: September 09, 2013, 04:34:21 PM »

Yes, we love updates!
Sorry about the weight. It's always a challenge when things change.
Even if you don't join a gym, it might help to walk a bit each day, but find what works best for YOU!
I am just thrilled that your kidney is doing well!
 :2thumbsup;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
NDXUFan
Full Member
***
Offline Offline

Posts: 190

« Reply #3 on: September 09, 2013, 05:33:42 PM »

Hello all! I haven't posted in a while because I haven't needed too due to a great transplant and an even better time adjusting to school. I'm currently enrolled in IB Biology, Human Anatomy & Physiology. My career destination is going to be a Pediatric Nurse. I don't know what college I'll go to yet. I want to go somewhere near my friend that's going out of state because she is literally my best friend on the planet and is like a second sister to me. Her name is Coral, and today she helped me with a garage sale...that failed miserably...but that's not what this post is about.

   Now to start off, let me give you a little background. On June 8th, I got off Dialysis at 97.3kg. The next day, my transplant made me go to 108kg that I slowly lost. Now, I'm starting to gain weight despite not being on steroids. I'm up to 112kg (but I have noticed it fluctuate around 110-112). So this wasn't satisfying to the hospital.

My clinic basically went like this:

Social Worker

SW: "Oh it seems you've gained weight. What went wrong?"  (Not your job, but fine, I'll bite)
Me: "I don't know, I haven't changed my eating habits much which never made me gain this excessively. I am planning to join a gym though, so I'm not too worried."
SW: "Alright, well we need to work on your weight. I'll let the dietitian know."

Dietitian

D: "Wow, you've gained a decent amount since transplant. What's going on?"
Me: "I don't know what's causing this sudden weight gain, but I'm going to join the gym with my friend and make a routine out of it."
D: "Ok, let's spend 15 minutes talking about ways to lose weight."

Doctor

Doc: "You've gained a lot of weight."
Me: "I know, I'm going to join a gym."
Doc: "You know the consequences of higher weight? We're worried about that."
Me: "I know, I'm well aware...that's why I'm joining a gym."
Doc: "Exercise more."
Me (not aloud): What the f**k?! I just friggin said...!


Get the idea here? If not, you'll notice I have a desire to lose weight and join a gym, but when I tried to alert them of that, it went in one ear, and straight out the other.

If you're not going to respect what I have to say, than why should I respect what YOU have to say? Regardless of if you've my new transplant team and you have jurisdictions, you have a physical quote that should be embedded in you. The patient is ALWAYS right!


On A Separate Note

Do you guys want me to post my story updates? I plan to start writing here in the next few weeks. I'm debating getting a Windows 8 Laptop/Tablet thing so I have word on the go to type (Much lighter than my laptop, and more versatile than my iPad).
I think that's respectable, right? A computer for writing and design? It'd be like a Widnows Surface RT. Like $320 for that thing :P


That Doctor is feeding you a lot of bullhockey.
Logged
amanda100wilson
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1202

« Reply #4 on: September 09, 2013, 05:43:06 PM »

congrats. on the transplant.  I would think that it would be perfectly jormal to gain weight postbtransplant, even without steroids.  You are feeling better, can eat normally.  Why is that so hard for the medical team  to understand?  I joined Weight Watchers to get the weight off post transplant (with steroids).  I lost 23 lbs, so going on a sensible diet, plus the exercise that you are planning at the gym, should help.  Good luck with your studies.  Must be an exciting time for you.
Logged

ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!