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Icare
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« on: July 18, 2013, 01:42:53 AM »
Hello
My name is Kim. I have been caring for my wife for 7 years. She is at a point were she can't do to much anymore,lack of breath and strength. I was glad when I found IHD, I truly felt like I was walking this road alone!  :waving; :waving; :waving.
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Poppylicious
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WWW
« Reply #1 on: July 18, 2013, 03:31:44 PM »
 :welcomesign; Kim! 
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Rerun
Member for Life
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Going through life tied to a chair!
« Reply #2 on: July 18, 2013, 03:41:02 PM »
Hi Icare and welcome to IHD.  You are a wonderful person to care.  It is a hard road.  We are here for you.  Thank you for joining.

Rerun, Moderator     :welcomesign;
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Angiepkd
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« Reply #3 on: July 18, 2013, 07:08:56 PM »
 :welcomesign; Kim!  You are in the right place for love and support!  Looking forward to seeing more posts from you.  Thank you for being a caregiver!  We patients couldn't do it without you.  It is a tough road, but knowing you aren't alone will help.  Lots of helpful people and advice.  I couldn't have made it this far without all the help I received from the good folks at IHD!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: July 19, 2013, 01:11:02 AM »
Welcome to the site Icare

    :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
boswife
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us and fam easter 2013
« Reply #5 on: July 19, 2013, 09:09:52 AM »
Welcome icare, i read this and started to cry.. Yep, your not alone :(    I wish you well, and strength and comfort. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lmunchkin
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Posts: 2471

"There Is No Place Like Home!"
« Reply #6 on: August 08, 2013, 08:26:19 PM »
Know Im late, but welcome Kim.  What an angel you are.  Your wife is fortunate to have you!  God Bless you for what you are doing.  Keep us posted on how she is doing & have her come on here too.  She will feel very much apart of this community.

Again welcome & God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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