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Author Topic: Hello from Romulus Michigan  (Read 2315 times)
DownRiverDave
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« on: June 06, 2013, 02:25:54 PM »
Hello all and Duck Dialysis, I started dialysis on July 8 ,2010 at a center 3 days a week for 4 hours 45 minutes each visit. I Hate In Center Dialysis. Fast forward 15 months later and I started home hemo with NxStage, I don't hate home hemp, but I sure don't like it.

 I still work full time, my quality of life improved on home he mo.

Glad to be here.
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rocker
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« Reply #1 on: June 06, 2013, 03:29:28 PM »
 :welcomesign;

You'll find lots of home hemo and NxStage users here.  Feel free to ask anything.
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cattlekid
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« Reply #2 on: June 06, 2013, 06:06:46 PM »
Howdy Dave and welcome! I am a NxStage veteran myself, did home hemo for 18 months prior to transplant. Also worked full time, I know what you mean about the difference in quality of life with home hemo.

I should also say that we get to your neck of the words fairly frequently as we have an elderly friend in Melvindale (aka the town time forgot) that we try to visit on at least a yearly basis if not more often.
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DownRiverDave
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« Reply #3 on: June 06, 2013, 06:40:32 PM »
Hello cattlekid , congrats on the transplant, no problem on grabbing a beverage when you come to town, I love meeting NxStage users.
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jbeany
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« Reply #4 on: June 06, 2013, 06:52:51 PM »
Hi and welcome from a fellow Michigander!  I'm in GR, formerly a troll living just under the Bridge in Mac City.

I know when I switched to NxStage, I didn't exactly love it, but it turned D into a rather annoying chore instead of a dreaded hurry-up-n-wait appointment in miserable surroundings! 

 :welcomesign;

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Wildrose
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« Reply #5 on: June 06, 2013, 07:22:47 PM »
 :welcomesign;
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
lmunchkin
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« Reply #6 on: June 06, 2013, 10:24:34 PM »
Quote from: jbeany on June 06, 2013, 06:52:51 PM
Hi and welcome from a fellow Michigander!  I'm in GR, formerly a troll living just under the Bridge in Mac City.

I know when I switched to NxStage, I didn't exactly love it, but it turned D into a rather annoying chore instead of a dreaded hurry-up-n-wait appointment in miserable surroundings! 

 :welcomesign;

jbeany, Moderator

Excellent discription!  Sometimes it is downright Boring to do as a caregiver, but I know & except the fact that Hubby is still with me because of it, and that Iam greatful.

Welcome Dave.  Lest some more robust or newly option comes forth, we will stick with NxStage.  It works for our situation and needs.  But we promise not to BRAG about it, we like being able to do it when we want. Not having to worry about schedules or times, is definately a plus.  Hope it works for you too!

Welcome again & God Bless,
lmunchkin
« Last Edit: June 06, 2013, 10:33:03 PM by lmunchkin » Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Poppylicious
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« Reply #7 on: June 07, 2013, 09:47:52 AM »
 :welcomesign; Dave!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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