I am Donna, a caregiver

donnal

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« on: April 04, 2013, 08:43:24 PM »

My friend of 49 years died a few weeks ago. I took care of her all the years she was sick and took her back and forth from dialysis, and doctors, and nursing homes, and hospitals, and rehab centers. Everything in this house centered around her needs. You used to have a section for just caregivers but I did not find it. I wanted to reconnect to all of you because several years ago, Elizabeth was losing her hair and I posted it. Many of you gave suggestions and it made her happy. She said everyone tried to say something encouraging and her hair did grow back. I feel so alone in this house now. I also just found out I have a tumor on my kidney.


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boswife

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us and fam easter 2013

Re: I am Donna, a caregiver

« Reply #1 on: April 04, 2013, 08:54:28 PM »

Oh goodness!! Please take care of you now.. Mabie it will help heal your heart knowing she would want you to be as good to yourself as you were to her. What an amazing friend you were. Keep in touch here. We're still a great group and can be 'friends' even if you get all better... Bless you for what you have given...


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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage

cassandra

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When all else fails run in circles, shout loudly

Re: I am Donna, a caregiver

« Reply #2 on: April 05, 2013, 12:22:20 AM »

Oh dear Donnal, I'm sorry you are having such an awful time. I hope that tumour is just benign?

Do take care of yourself,

Wishing you all the best, love Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

Grumpy-1

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Make me the person my dog thinks I am

Re: I am Donna, a caregiver

« Reply #3 on: April 05, 2013, 03:24:59 AM »

Donnal Thank you for being a caregiver to someone. It is an important job that many times goes unoticed i :2thumbsup;ced. I too hope your tumor is benign. Stay in touch and feel free to give us all your experiences - the ups and downs as a caregiver. Nice to know another point of view. Grumpy


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Make me the person my dog thinks I am

Deanne

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Re: I am Donna, a caregiver

« Reply #4 on: April 05, 2013, 08:34:33 AM »

I'm sorry for the loss of your friend. 49 years! She must have been a very important family member for you. I can't begin to imagine the hole her loss must have left in your life.

I hope the tumor on your kidney is successfully treatable. It would be a lot to deal even in happier times.


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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014

renalwife

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Re: I am Donna, a caregiver

« Reply #5 on: April 05, 2013, 01:38:19 PM »

What a wonderful friend you are. And now you are having your own battle. Let us be your friends and we will go with you during your journey back to health.

I personally like it here because there is such sincere support on whatever is ailing us or troubling us. Be assured that we care.


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lmunchkin

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"There Is No Place Like Home!"

Re: I am Donna, a caregiver

« Reply #6 on: April 07, 2013, 12:01:36 PM »

Oh my, what an "Angel" we have here! You reached out and helped a friend in need. You are so special, Donna. Now you are heart broken and dealing with your own health issues. God will show favor on you my friend! God Bless you, Donna! You are a good & devoted servant.

Let us know how you are doing. You have found a home here on IHD.

Again welcome & God Bless,
lmunchkin


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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home

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