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Author Topic: Checking in for almost a year, but haven't introduced myself, I think.  (Read 4966 times)
Dragonfly
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« on: April 13, 2013, 03:26:10 PM »

Hello My name is Norma and I was diagnosed November 17th 2009, with SLE, whiched caused me to get renal failure, raynauds' and pulmonary hypertension. I was in the hospital for three and a half weeks and spent the past two years trying to be somewhat normal. It has been a rollercoaster ride. In and out of the hospital, tests galore, all types of specialist. I Started out doing hemo with a shyley in my groin, that came out just before my release from the hospital, when they put a catheter in my chest. I had that for about six months, when I decided to do PD, did that for about ten months, when I went into the hospital and found out my catheter grew into my fallopian tube and was leaking out of my vagina. So back to the chest catheter  for about four months, then I had a graft put in. This is where I am at today, graft in arm and hemo in center. Trying to deal with my new way of life, but with no support from family and friends, besides my wonderful 18 year old daughter, it is extremely hard. I posted this because I wasn't sure if I introduced myself or not, if I did, sorry for the repeat. Nice to be here, reading what others are going through, I know I am not alone.

Norma
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
MaryD
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« Reply #1 on: April 13, 2013, 04:14:47 PM »
You did introduce yourself before, Norma.   But welcome back!  It sounds as if you have a lot on your plate.  Hope it sorts itself out soon.     :welcomesign;
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boswife
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us and fam easter 2013
« Reply #2 on: April 13, 2013, 08:54:49 PM »
wow!! you have been through a lot i'd say!!  So glad you found your way here and feelin a bit more normal hangen with others who have similar issues.   :welcomesign; and post away.  it'll help you feel better ;)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Dragonfly
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« Reply #3 on: April 14, 2013, 08:23:10 AM »
Quote from: MaryD on April 13, 2013, 04:14:47 PM
You did introduce yourself before, Norma.   But welcome back!  It sounds as if you have a lot on your plate.  Hope it sorts itself out soon.     :welcomesign;

Did I? Thanks for letting me know, sorry about the repeat.
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
Dragonfly
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« Reply #4 on: April 14, 2013, 08:23:41 AM »
Quote from: boswife on April 13, 2013, 08:54:49 PM
wow!! you have been through a lot i'd say!!  So glad you found your way here and feelin a bit more normal hangen with others who have similar issues.   :welcomesign; and post away.  it'll help you feel better ;)

Thank You...
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
lmunchkin
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"There Is No Place Like Home!"
« Reply #5 on: April 15, 2013, 04:29:31 PM »
Welcome back Dragonfly.  You have had a rough go of it, haven't you.  We wiill be your family now.  We all understand here!

Again welcomeback & God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
boswife
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us and fam easter 2013
« Reply #6 on: April 15, 2013, 09:00:45 PM »
haha... ps, just 'connected at your "name"... i have a 'thing' for dragonflys :)  Or they do me :)  My family has always laughed at the fact that when we're out in ANY water place, the dragonflys find me and want to sit with me...  Just a little funny thing i'd almost forgot  ;D
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Dragonfly
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« Reply #7 on: April 16, 2013, 04:01:15 PM »
Quote from: lmunchkin on April 15, 2013, 04:29:31 PM
Welcome back Dragonfly.  You have had a rough go of it, haven't you.  We wiill be your family now.  We all understand here!

Again welcomeback & God Bless,
lmunchkin :kickstart;

Thank You
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
Dragonfly
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« Reply #8 on: April 16, 2013, 04:05:12 PM »
Quote from: boswife on April 15, 2013, 09:00:45 PM
haha... ps, just 'connected at your "name"... i have a 'thing' for dragonflys :)  Or they do me :)  My family has always laughed at the fact that when we're out in ANY water place, the dragonflys find me and want to sit with me...  Just a little funny thing i'd almost forgot  ;D

They always come around me also. When my Dad was dying I read him the Dragonfly Story, after he passed his ceiling fan cast a shadow of a dragonfly and after that they were always around. I have actually started a collection. I have even made large ones to hang on my wall.
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
boswife
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us and fam easter 2013
« Reply #9 on: April 16, 2013, 09:31:55 PM »
dragonfly story?  I would like to hear :)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Dragonfly
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« Reply #10 on: April 17, 2013, 01:22:46 PM »
Quote from: boswife on April 16, 2013, 09:31:55 PM
dragonfly story?  I would like to hear :)

I will try to find it and post it up here if we are allowed to do that.
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
chiromac
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Dr. Larry (Chiropractor)
« Reply #11 on: April 18, 2013, 09:01:24 AM »
Welcome back & I'm sorry for all the issues you are facing.
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Dr. Larry (Chiropractor)

My life has been drastically changed and I want to get back to the living my life.

I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨

Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
Multiple Heart Bipass Surgery
AV Fistula
Dialysis - In center 3 days a week 4:15 at a time
Neuropathy
On Transplant List and Hoping
Dragonfly
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« Reply #12 on: April 18, 2013, 11:16:38 AM »
Quote from: chiromac on April 18, 2013, 09:01:24 AM
Welcome back & I'm sorry for all the issues you are facing.

Thank You
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
boswife
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us and fam easter 2013
« Reply #13 on: April 18, 2013, 04:45:39 PM »
yep you can post... theres a place for 'off topic' stuff..  :)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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