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Author Topic: missed my transplant call  (Read 4720 times)
Rain
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« on: March 08, 2013, 09:36:45 AM »
I got a call at 2:30am, I was exhausted and fast asleep, and apparently the hospital tried 3 times, but I didn't move until the last call and i never made it to the phone in time.  They also tried my cell, but apparently it was dead and charging, never noticed the calls until the morning.  But nothing to my pager.  After calling my dad to be sure he was okay, because the number came in as unknown name/number,   I decided to call the transplant office, sure enough, there was kidney for me, but because I didn't make it to the phone on time, it went to someone else.   I asked why they didn't try the other numbers I provided, and they mentioned it's up to the discretion of the person calling.

 I just feel disflated that i missed my chance at a transplant,  My boyfriend was trying to cheer me up saying it wasn't my time yet, my kidney is still out there.   From now one I am sleeping with my cell phone on full blast and my home phone next to the bed, so I won't trip trying to get it.
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
cattlekid
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« Reply #1 on: March 08, 2013, 11:33:30 AM »
I am so sorry to hear that.  But like your BF said, because you got one call, that means that the next is surely soon to come.  I know that I keep my phone on full blast next to my bed at all times.  I did get one call at 4:45 AM and it scared the living daylights out of me. 
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Speedy1wrc
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« Reply #2 on: March 08, 2013, 12:05:00 PM »
Sorry to hear of your diasppointment. I missed out on a chance but for other reasons, and it hurts.

I am totally anal and I sleep with my ohone on high and keep it next tio me 24/7. I even take it in the bathroom with me. I also make sure to have a charger in every vehicle and always take 2 with me whenever I travel. It's massive overkill, but it works for me.

Good luck and I hope the next call comes very soon.
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Deanne
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« Reply #3 on: March 08, 2013, 12:11:39 PM »
I'm sorry! This is one of my greatest fears. I try to keep my phone on me at all times, but I have to do things like shower and I never think of it when I make a quick trip to the bathroom or to the cafeteria to grab lunch at work.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
MooseMom
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« Reply #4 on: March 08, 2013, 12:59:49 PM »
I'm really sorry to hear this.  It must be extremely frustrating.  But like the others have said, getting a call at all is a good thing.  I hope you get another one soon!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rain
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« Reply #5 on: March 08, 2013, 02:16:29 PM »
Thanks everyone.. I feel better.   I am just disappointed with the hospital not trying my pager or my bf cell #.  His cell was in the bedroom with us and my pager was on full blast in my purse in the hall way.  And if they called one more  time,  i know I would have picked up.

But I am happy, that someone else got the gift of life.. 
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
jeannea
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« Reply #6 on: March 08, 2013, 02:40:34 PM »
That's a really tough one. I hope the next call is soon.
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amanda100wilson
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« Reply #7 on: March 08, 2013, 03:48:40 PM »
disappointing to sathe least.  :grouphug;
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #8 on: March 08, 2013, 07:42:35 PM »
That stinks that they didn't page your beeper - have you checked it to make sure it's working? When we had our pager, when the call came, we had left the pager at home because we were told that my husband would be on medical hold as he had just had his parathyroid out that Monday. They did get us on our cell phones but it was also daytime. I can imagine the same scenario playing out here at that time - I sleep through like 4 alarms every morning.

But like everyone says, you're close and your kidney is out there  :cuddle;
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
natnnnat
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« Reply #9 on: March 08, 2013, 10:08:59 PM »
OMG!!!!  :stressed;  That would have upset me so much!!!!!!!!!!!!!
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
jbeany
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Cattitude
« Reply #10 on: March 09, 2013, 08:37:42 AM »
"At their discretion"  Are you f-ing kidding me?  What heartless soul at the other end of the line decided to keep calling two of the numbers repeatedly, but not try any of the others on the list?   :Kit n Stik;

Hang in there Rain - at least you know you are at the top of the list!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
tiredandthirsty
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« Reply #11 on: March 09, 2013, 09:45:27 AM »
Quote from: Speedy1wrc on March 08, 2013, 12:05:00 PM

I am totally anal and I sleep with my ohone on high and keep it next tio me 24/7. I even take it in the bathroom with me. I also make sure to have a charger in every vehicle and always take 2 with me whenever I travel. It's massive overkill, but it works for me.


ditto.  although i have received only one call so far back in Jan'12 and nothing since then, i take my phone EVERYWHERE.  even to the bathroom. 

so sorry to hear about this.  but next one is just around the corner.  hang in there.   :bestwishes; :thumbup;
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Rain
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« Reply #12 on: March 09, 2013, 03:48:46 PM »
I hope my next one is around the corner. And yes my pager works.  And I have 2 people that volunteered to go through the living donor process.
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Big E
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« Reply #13 on: March 09, 2013, 06:29:03 PM »
 :stressed;  :stressed;

I'm so sorry, Rain.  OMG! That must be so aggravating!!!  I hope you get another call very soon...
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
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