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| | |-+  1st week of training finished!
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Author Topic: 1st week of training finished!  (Read 2838 times)
Angiepkd
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« on: March 08, 2013, 05:03:44 PM »

Today was day 5 of my NxStage training. I am happy to say that I am doing pretty well.  Aside from some pressure issues, my runs have been good. I am able to set up using the cheat sheet, have changed and primed a pak and made 2 batches of dialysate. Today I pulled one of my needles and after we reposition my venous, will be able to pull that one, too.  The week hasn't been all smooth sailing. I unscrewed the cap too far filling the saline t and it shot off, spraying saline around the room. The next day I wasn't holding the correct spot after pulling the venous needle and did the same thing with the arterial lol! I turned my training room into a blood bath. Thankfully my HHD nurse was very understanding!  I don't want to jinx myself, but I think I can do this!  I have a trip to the access center scheduled for Wednesday, so hopefully they will fix everything and my pressure issues will be resolved. Lots more to learn, but I am getting it, even with my "kidney brain".   :beer1;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
newgrl
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« Reply #1 on: March 12, 2013, 09:39:48 PM »

AngiePKD,

Will you be self-cannulating?  If so, when will you start that?  I have a left upper arm graft and I am afraid I will not be good at it.  My training nurse said I will start self cannulating on Thursday. 

Newgrl
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willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: March 13, 2013, 08:06:06 AM »

Good news!  :2thumbsup;

Been there!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Speedy1wrc
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« Reply #3 on: March 13, 2013, 05:59:26 PM »

Congratulations!
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