Dealing with seasonal chronic pain.

[Ladystardust24]

(Okay, if you're on the Facebook group, I'm sorry for the cross posting. But I wanted to get more input.)

I originally asked:

"Question, do others here get winter related bone pain? If so, how do you manage it? In general, my body is just not having it recently, but i have important errands and things I want/have to do. Since I have more than just kidney disease, I also have hip necrosis, bone issues, gastroparesis.

It's just getting very overwhelming. I'm 23, I have a life to live. A life I want to live. I'm working on letting my body rest when it needs it. But anyways, look forward to input.

How does everyone else do it?"

[CebuShan]

I'm a bit older than you so what I get is mostly arthritis pain.  I just keep going. That's really all I can do! I just take it slower and do things in stages on the days it is really bad.
     Hope you get to feeling better soon.

[Riki]

it's not something that's easy to deal with.  I find heat seems to work, if you have a heating pad or hot water bottle (or hot cup of tea.. *G*), just kind of rest it against the sore spot.  Mine seem to be in areas that I had injuries when I was young and stupid, but on cold or damp days, I feel it in uninjured areas too.  If it's really, really bad, I will take a couple of Aleve, though we're really not supposed to use it.

[jbeany]

First thing, are you on Reglan for the gastroparesis?  If they haven't given you something to treat that, kick them and demand it.  It's impossible to have a normal life when puking is a daily event.  (Gee, guess how I know....)

I'm with CebuShan - I've got pain, although not the same kind.  Personally, I just get up and get moving, too.

I had a conversation this week with some friends, one complaining about how her broken/sprained pinkie toe was still hurting 3 months after injuring it and the docs said they couldn't do anything for the pain.  (No, I was nice.  I didn't laugh.)  Another friend rhetorically asked if you could get used to pain.  I answered seriously - "Yes, you can."  Well, I have, anyhow.  It does depend on how high the level is, certainly, but the constant low level of pain I have from my messy complications usually doesn't bother me. 

(Take 7 or 8 belts.  Put them around your abdomen, buckle side in and stacked above each other, buckles lined up over your belly button.  Pull until you just have enough room to breathe.  Leave them on all day.  Welcome to my world.) 

I feel it when I lay down, when I bend over, when I hunch in a chair for any length of time, and especially when I'm on the treadmill or lifting things close to my 25 pound weight limit.  I'm learning not to think about it mostly.  As long as I'm busy and my brain is occupied, I'm good.  It's only when I slow down and start thinking about how I feel that I notice it.  I think it's become background noise for my brain, kind of like the way your nose is always in your field of vision, but your brain just ignores it.

[Annig83]

I have rheumatoid arthritis.  When winter hit I felt it everywhere.  I went to my rheumatologist for pain killers and Plaquenil (which helps with swelling and pain). I'm not one to take medication the minute something starts, but this year seemed worse for me. I'm only 29 so I'm not much older than you, I know how it is to feel like you're not living life to the fullest.  There are so many things I want to do, and really everyone who has already posted is right, you just have to push yourself... I find that even if I push a little and can at least get the vacuuming done around the house I feel accomplished and not nearly as depressed.  Taking a hot bath, or even getting through a chapter of a book gets my spirit soaring because it's something I've done for the day regardless of being on D and fighting the urge to go to bed and give up. 
I think if you take baby steps towards the things that you REALLY want to accomplish you will get there, but for now push for the little things to keep going.  I make out a list of goals everyday and try to do at least 50% of the list.  Some days I can do the whole list!!   Don't over exert yourself, and if you ever want to talk I'm here! 

[kitkatz]

People do not understand when you hurt like hell most days.
I usually get up and do what must be done. 
I have heat packs to use and muscle rubs if needed.  Naproxen helps sometimes, too but not often.
I also stop what I am doing and try to rest when needed